Any advise to help with Sjorgens.. Dr... - Scleroderma & Ray...

Scleroderma & Raynaud's UK (SRUK)

10,825 members5,405 posts

Any advise to help with Sjorgens.. Dry mouth is uncomfortable..

catkar profile image
5 Replies

Hi everyone,

Have been living with Crest, with Neuropathy and Sjorgens, The dry mouth seems to be getting worse and i can,t eat much without the aid of water to enable me to swallow . Has anyone got any advise to alleviate the symptoms please ?... Also if anyone lives near St Albans it would be nice to meet up to just talk about the perils of Crest !!

Thanks Cathie xx

Written by
catkar profile image
catkar
To view profiles and participate in discussions please or .
5 Replies
Lupiknits profile image
Lupiknits

Biotene toothpaste and mouthwash help to an extent for me. For nighttime I use xylimelts oracoat which you stick inside your mouth. Mine move around because I’m a tooth grinder, but they help me a lot with the overnight dryness.

catkar profile image
catkar in reply to Lupiknits

Thank you so much Lupi, i'll definitely try your recommendations.

honeybug profile image
honeybug

Hi Cathy😊🌿🌸🦋

I have severe Sjogrens myself.

My ENT put me on Evoxac. It has made my body produce moisture. Before them I couldn’t cry tears. All I got was severe pain in my dry tear ducts.

I’m across the pond. So I’m not sure if Evoxac is available there. But one capsule every 12 hours works wonders.

I hope this will be available to you too.

Best wishes my friend.

EJ xxx

catkar profile image
catkar in reply to honeybug

Thank you Honey,

I'll enquire with my Pharmacy if this is available her...

Good health to you..

Love Cathie x

honeybug profile image
honeybug in reply to catkar

Most welcome sweetie.

Good luck.

Love. EJ xxx

You may also like...

Dry Mouth advice please

Hello, has anyone got any recommendations for products that help tackle a dry mouth, especially...

Any help with sides of mouth splitting?

for some months now the sides of my mouth have been splitting - no dry cracked lips, just the...

Any advice on my shrinking mouth

so down is my shrinking mouth, my lips have nearly disappeared and my mouth is puckered, I can't...

Shoulder Pain - CREST Symptom?

Has anyone had similar with joint stiffness and if so what treatment have you had? Also, is anyone...

wrinkled mouth- any suggestions on how to improve

really is trial and error. So if anyone has found such a product please don't keep it to...