Scleroderma & Raynaud's UK (SRUK)
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Shivering inside?

Hi, ive had reynauds for a number of years, not too bad but worse last coiple of years. I take Nifedipine when it starts to get really cold like now. I have scleroderma also.

This last few weeks ive been experiencing what i can only describe as a shiver running through my body inside. Its like a vibration and feels very odd. In my main trunk and sometimes im just my left arm. Does anyone have any clue what it is?



5 Replies

I have something like this as well. And it doesn't really bother me when it does a complete shiver but sometimes there is a weird point when it is like a partial shiver and just feels weird and like something is wrong. If I'm lying down, which i usually am when this occurs, I have to get up and walk around. I'm sorry I don't know why this is happening. I have wondered if the shivers are connected to edema being reduced. Somehow I consider the shivers to be a good thing but I don't really have a reason for that assumption.


Yes they always happen to me when im lying down. Its an odd feeling isnt it, its like something inside is being shrivelled!


Yes It does feel like a shriveling sensation. It's very unnerving. (Disconcerting not really nerves. Or maybe it is connected to neves somehow) I do keep forgetting to ask my doctor about it.

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I sometimes get that 'cold on the inside' sensation when my thyroid is low. It also happened when I was severely iron deficient. You can have more than one thing go awry. Maybe speak to your doctor about it.


Hmm thanks. I may do


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