Re-Treatment.

[moppett]

Hi Guys/Dolls. Over the last few months I have been reviewed for Raynaud's and never been told if I have it or not, I also when inro hospital before christmas for 10 days to have a 6 hourly drip put through me, at 5.20 mg. But this got F....up by staff by giving me 8.40 mg per hour, and hell that caused troubled,well out now and been kick in ba........s and told to clear off by doctor thinks that I'm putting a con, I just lost one leg, and my right leg is going the same way. Why don't Gp's or Doctor's want to belived us we no our own body's don't we. hope to hear some answers from Frimley park hospital over this...

[ceegee]

Hi moppett

hope that you hear back from the hospital soon.. Frimley Park is generally a very good hospital

[moppett in reply to ceegee]

Hi, thanks for getting back, I'm sorry if this treatment has been around so long why was't they able to saved my leg, that cut it off, I'm now faceing the time of the ambulance service in taking me to Roehampton to get a falsed leg, Had one leg, no good won't fit. waste of money. Oh well whom do I trust. Well answer to your Question trusted Frimley Park, I'm Sorry but Frimley have kick me down so much they are hurting me, in not being honest.

[moppett in reply to ceegee]

have sent you a message hope you get it. via inbox

[zenabb]

Ring the rheumatologist's secretary and tell her nicely her that you want to see the rheumatologist because you are unhappy, or ring your specialist nurse that is what she is there for. If you don't know who she is, ask the secretary or the Raynaud's and Scleroderma Association who she is.

Were you weighed before your Iloprost? Good luck.

[cookie74]

hi moppett...x

i agree i ave had sec raynauds since i was 18, ( 19 years ago now ) :S n they dont know jack s**t about it,, one GP did but she retired 3 year ago whats helped me is looking it up,, sister lived in usa n got me some good reading material from there, and people on here ave taught me loads,, then i go to GP telling them!!! i have been given more than needed of ilprost TWICE they came running with the crash trolly, once the nurse had false nails n started it too high n then cudnt turn it off!!! scared wasnt the word lol, i did ave it every 6 week, 12 hourly drip,,but now i do the 6 hourly which i dont mind,, hope u all stay safe n keep warm, in this nasty weather,xx

[ceegee]

@ moppett

My aunt runs the maternity unit at Frimley Park. Would you like me to contact her and see if she can give you the correct information for the right department or information as to who you can contact regarding this situation?

[zenabb]

Ask to be referred to a rheumatologist. They know about Raynaud's and Scleroderma. Ask your GP to do it. Yo have the right to choose. I can understand why you are angry, I would be too. Good luck.

[ceegee]

Hi David

sure I am always willing to help, just inbox me with your details so I can pass them over... hopefully she might be able to help in some way or point you in the right direction

[moppett in reply to ceegee]

have sent details over to you, via your inbox? hope they get their, let me know.

David.