Long lost SS member !!

[Bettyboop71345]

Hi,

I haven't posted in quite a few months. Recently found out I have stage 3 kidney disease. 😖...

Oh , just have to be really careful from now on. No nsaids, only Tylenol... lots of water. My paresthesia is fine with Plaquenil and high dose of Gabapentin daily. Also diagnosed with Tardish Dyskinesia from so many years of psych meds. Taking Austedo for it. Waiting for the movement to stop. That's about it for now. Hope all have very Happy Holidays 💕

[Basa20]

Hello BettyBoop71345,

I’m sorry to hear you have stage 3 kidney disease. I can’t imagine what you may be going through. 😞I was diagnosed with Sjögren’s syndrome October 2018 and currently taking 400mg a day for it. Then diagnosed with Fibromyalgia February 2019 and currently taking Gabapentin 300 mg a day. If I may ask you... did you get this kidney disease because of the Sjogrens? How long have you had Sjogrens and started having kidney problems?

[Bettyboop71345 in reply to Basa20]

I assume it is caused by SS, but no one has said so.I‘be had it for years undiagnosed until 2018...Started losing teeth about 10 years ago. I was only diagnosed with kidney recently. I wish you well. Take good care💕

B

[Hidden]

Hello Bettyboop71345, i'm new here but at the same time sorry to hear what your going through as Sjogren's can have a large impact on the organs in time.

I've had my kidneys flare up and been admitted to hospital besides urinating blood.

Happy Holidays to you also and wishing you the very best 🥰

[Bettyboop71345 in reply to Hidden]

Hate to hear of your problems with kidney disease. Hope we've caught it in time🤞🏻

Do stay in touch. Wonderful holidays🌲🎅🏻

B

[Hidden in reply to Bettyboop71345]

Bettyboop i will ask a question if you don't mind..my kidney reading always say 60 when it should be 90, as it shows the proper results on the other side of the form to make sure your ok and underneath it always says in brackets..refer to CKD.

I mentioned it several times to the rheumo's and they've said everything is ok but when i spoke with the lady who takes my blood, she said they should be looking in to it?

I've looked it up and apparently it's stage 2.

Stage 2 Mild CKD (GFR = 60-89 mL/min)

[honeybug]

😊🙏🤗💗😘😇🕊🎄🎁🦌🎅❄️☃️💧

[SusieW2]

No words except, Sorry to hear this. Good wishes for treatment. Allow your friends & family to help; lean on them.

[weathervane]

Best wishes Bettyboop , i hope you are able to enjoy Christmas and that things improve for you in 2020 🎅🎄⛄️

[Tally]

My heart goes out to you. Kidney Disease is not good. Please take care xxx