hi there everyone .,,i am new to joining this site and was recommended from someone else. i attended my hospital in arpil this year and told i had SS and handed a leaflet and told to come back in 6 months. i take Hydroxychloroquine twice a day. i also take thyroid tablet 75mg daily. i have been on anti depressants for nearly 2 years and on the highest dose i can get., i have been told by my G.P.often that i might need a vit b12 injection but then he refuses it saying i am border line for it and don't need it.
i have to go back to rhuematologist. on 12th september to see how i am/.i think?.
i have chronic fatigue, as well as aches and pains, dry tickly cough when i go to bed and i suffer nose bleeds due to the lining if my nose thinning, so i have creme for that. some night s i really struggle to sleep. others i can sleep and sleep. i recently went to the neurologist for nerve testing as i get pins and needles in my hands and fingers and my hands are sore to use.but i do not have a trapped nerve.. i cant walk far because i get so short of breath. and i am struggling to lose weight... i have started drinking lots of water to help me with my dry skin. which was a total pain for a while... i get really sore tongue and gums and mouth but just persevere...i don't know what will happen in september when i go back to see the specialist at hospital. . .. i have a huge list of symptom,s for him lol. sometimes my face goes numb and i can't drink out a cup but it does go as quickly as it comes. i don't have a very good memory and can't work out things as easily as i used to,i have no concentration span and have recently gave up driving mainly because i cant concentrate and also i get too sore driving... left leg goes very sore and heavy... i'm trying to say as much as i can so anyone can advise me more hat to expect when i go to hospital..
anyway i think i have said enough...... thank you for reading..... and hope to meet many people .xx