Truqap: Cancer markers rising !! They... - SHARE Metastatic ...

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Truqap

Mcangel11 profile image
8 Replies

Cancer markers rising !! They can't find the source saying microscopic cells..I am deathly afraid of this drug ....anyone on it???

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Mcangel11 profile image
Mcangel11
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8 Replies
Warrior77 profile image
Warrior77

I was on Truqap for three months. No problems or side effects, but it didn’t work for me and I had more progression in my liver mets. Very disappointing since Truqap was a match for the liver mutation. So far in the space of 14 months I’ve been on Verzenio, ibrance, everilimus, and Truqap. All worked stabilizing my bone mets, none were effective on the liver. Verzenio was the only one I had really bad side effects with. Yesterday was my first Enhertu IV treatment. Hard to get my hopes up, but here I am with a spark that says maybe this one .,.

Kcuocci profile image
Kcuocci in reply to Warrior77

I also have liver and bone mets and will have my 4th Enhertu treatment next week. Like you, I'm hoping this is my drug. Have been on ibrance, Verzenio, piqray and Xeloda!

Gingerann1 profile image
Gingerann1 in reply to Warrior77

Praying this one is the one as well. Stay strong! 🙏🏻

MettavivorDS profile image
MettavivorDS

The side affects of Triqap are supposed to be a lot lighter than those of Piqray. It’s taken 4 days on and 3 days off. I’ve only been on it for 1 1/2 weeks and so far, so good.

LDR1 profile image
LDR1 in reply to MettavivorDS

I found Truqap more difficult than Piqray. With P I had occasional diarrhea but that’s it. With T, not only diarrhea but more fatigue, headache and other issues on the “off” days (when not taking the med). Each person is different …

MettavivorDS profile image
MettavivorDS in reply to LDR1

I’m glad you said something about symptoms on the off days. I’ve been noticing leg and foot cramps on the off days, but not on the days I’ve been taking the Truqap. I actually went to the doctor and got checked for blood clots, but there weren’t any.

LDR1 profile image
LDR1 in reply to MettavivorDS

Oh, I’m sorry to hear that, sounds uncomfortable! There’s a Truqap patients’ Facebook group that I’ve found helpful, and a lot of people have mentioned feeling worse on the “off days,” so it seems quite common…

Yikes123 profile image
Yikes123

I’ve taken TRUQAP since January. I haven’t had a rash.

I encountered diarrhea. I learned to prophylactically take Imodium to manage diarrhea during the 4 day on cycle.

Good luck.

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