Hi I have invasive lobular breast cancer . ErPr+Her- About 4 weeks ago, Had right mastectomy and all nodes removed as one node biopsied with cancer. Turned out 3 nodes had cancer so now I’m awaiting results of nuclear bone scan and ct scan to see if it spread. I had a tissue expander inserted . All wounds had heeled but now have a pink warm patch above my tissue expander. Grade 2
Waiting is hard
Waiting is the worst thing ever; but please don’t worry… 3 nodes doesn’t at all mean it spread. (I had three affected nodes and was fine for 13 years) It’s normal to have scan to make sure.
Hi! I had 6 positive nodes in 2006. Decided not to have expanders due to sensitivity issues. Take heart, give yourself time to heal and we’ll be sending lots of positive thoughts your way as you wait for results.
And yes….”scananxiety” is real and tough!
me too… I had 1 pos node for invasive lobular cancer and no further spread for 16 years… of course not everyone has their cancer return. And if you are found to be De novo meaning metastatic at first dx, those folks seem to do really well with very long outcomes… 10+ years. My advice is to try not to succumb to panic and you do this by trusting your team to guide you… plus I bet a serious lot of love is coming your way from family and friends who will be there for you!
Hi there
What treatment are you doing? Did they recommend radiation? Am similar here and consigning straight to Verzenio
yes I did verzenio too….. maybe 6months after a good while on Ibrance… then xeloda for 18 months.. the 6 months on Doxil… making a change now to Enhertu .. good luck my dear!
Sending you hugs and prayers. Hoping that you get good news that it has not spread anywhere else.
Will be praying that it hasn’t spread and that you don’t have to join the club no one wants to join, living with MBC. If it has spread know that you will have great support and a place to get great advice and tips for dealing with med side effects, info on latest trials, comforting thoughts through tough times. I was diagnosed 4 years ago next month with MBC after being in remission for 7 years from my orig. bc. It can really take all the wind out of your sails. This site has been a Godsend as we share this journey together.
26/10/24 My my bone scan was all clear but CT scan found a lump on liver which may be benign thingy. I have to get MRI scan of liver to check it’s not threatening . Feel it’s all good news as liver can often have random growths
Lobular carcinoma on scans
Stage 4 breast cancer in lymph nodes on palbociclib
Metastatic Newbie…Not Where I Want to Be🙂
Tumor Markers (how reliable)
