Just a quick vent - but first know that I am blessed and grateful for my life and for all of you and for the availability of all these meds that keep us going.
So here's the whining part and no response required just putting it out there for "future me's"
Next week I will have what I suspect will be my last Enhertu infusion because it hasn't been showing signs of working on my Tumor Markers and I will be getting a scan the following week to confirm that assumption.
This drug, according to my NP, causes increase in stomach acid production. She recommended Pantaprozole and pepcid - I did that religiously for a few weeks, but here's the problem..I only vomit when my stomach is empty (which some would say is not so terrible) so why would I take all this acid reducing medicine? I took an anti nausea pill yesterday and threw up an hour later. I guess I have to eat constantly and that's not exactly what I want to do or feel like doing. It's a super frustrating situation especially when I do vomit it's horrific - my nose bleeds and I break blood vessels around my eyes. it scare the heck out of my husband. My final whine about this is that we are going on a trip next week that we planned around side effects so there is a 50% chance this vomit thing will occur on the plane ride back - that is not a pleasant thought. I even spoke to a flight attendant friend to ask what I should tell the staff. BLGHHHHHH.
Anywho, thanks for "listening" to my vomit story on USA eating day, I guess I will start eating now. I guess if my scan is good I will have to suck it up and rescind my thought on this med.
Allison
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Iwasborntodothis
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I so understand your frustration, but mine is with a different drug. And yes. We are “lucky’ And should feel “Grateful” shouldn’t we? But I am so over feeling like I do too. So I’m with you Sista! So sorry your’s is about gut stuff. How awful for you. X
Thanks! I am sooo over this drug. The empty stomach theory did not work yesterday with the lovely meal my hubby prepared so that was even more frustrating. UGH!
my heart goes out to you! My big problem on Enhertu is sudden diarrhea. Now I have a prescription that helps a lot. I worry about planes. It must be so difficult to have an upset stomach so often. Please tell me the next med you go on. I keep thinking that my next drug is full blown chemotherapy.
I had issues too with nausa meds. I eat banana and drink milk prior to meds. Never have had issues since. Enhertu did not work at all for me neither did eribulin. Although, I am her2 low, I am still neg with no amplification. That was as of Feb. Doing mgs on Monday. Go on trip and try to enjoy.
Thanks - I will try the bananas - I drink tons of milk. Chewing gum helps sometimes. I just get the almost no warning need to vomit when my stomach is empty. I am also her2low. Trying not to worry about the plane ride - my flight attendant friend says they deal with much worse on a regular basis so dont worry.
That is not fun at all. I feel for you. Vomiting on an empty stomach is almost worst for me as there is nothing to eject! But I fortunately have not had issues like that on Enhertu. (Just had my #4 this week). Sometimes if I let myself get too hungry that actually starts to feel like nauseau, so then I try to nibble a protein snack, which seems to really help. I was ravenous for a few days in a row last week, despite eating good meals! Anyway, I hope you manage to travel without any incidents. And that your scans show improvement despite all the woes of the drugs
Thank you. The nausea has gotten increasingly worse first it was just week two but now it is stretching into week 3. I think I have had 5 rounds and the 6th is this Monday. Flight is Tuesday because I am still feeling good for a week after infusion. I am trying the nibbling thing but I forget in the afternoons and thats when the problems happen - between 3 and 5 PM. I have been able to figure out a routine for every other thing I've been on but this one is too unpredictable.
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Enhertu it is.
First scan after Enhertu
Enhertu 
