enhertu

[CTGirl1962]

I had my first dose of Enhertu last Thursday. I was fine for a few days and now I’m completely wiped out, bad diarrhea and I don’t even feel human. Does it get better? I am praying that it does! Any help and or support you can give me will be gratefully accepted. 🙏🏻

[Charlie_99]

So sorry to hear this!! Doesn’t sound good at all. Can you talk to your doctor about lowering your dosage for next time maybe? Understand they start with the higher recommended dose (which is like 225mg/kg which seems like a lot) but can titrate down if you’re not tolerating it. You need to feel at least human as that’s no quality of life.

[Pbsoup]

have you joined the Facebook Enhertu private group? It’s full of ideas for side effect management as well as success stories.

I hope you feel better soon.

[CTGirl1962 in reply to Pbsoup]

I just joined the group. Thank you!!! 🙏🏻🩷🙏🏻

[Chamisa]

It gets better. The middle week of treatment is usually the worst. The week before infusion is pretty good, from my experience and from those in the Facebook Enhertu group I’m in. Search for Enhertu (DS-8201A) on Facebook to find the group.

[CTGirl1962 in reply to Chamisa]

Thank you!! I’m in the group!!! 🙏🏻🙏🏻🙏🏻

[Warrior77]

Yes! It gets better! I had my first dose two weeks ago. Was fine for two days then crashed. Slept on and off for two days straight then it took a few more days to get back to normal. I didn’t have diarrhea, but did have indigestion for a few days. I will say sleeping for two days scared the heck out of me. I’ve never had fatigue like that. You’ve got this. One day at a time.

[CTGirl1962 in reply to Warrior77]

Thank you!! You give me hope! I’m still extremely fatigued, but hoping this will pass. 🩷🩷🩷

[Warrior77 in reply to CTGirl1962]

I have my second treatment next Wednesday. Now that I know what to expect, I’m kind of curious to see how it plays out. The first one is always the hardest (and scariest!)

[CTGirl1962 in reply to Warrior77]

It is!!I pray that it gets easier for us!! I have a household to maintain and people who depend on me. I can’t even take care of myself at this point. Thank God I have a saint for a husband. He is my saving grace. 🙏🏻🙏🏻🙏🏻🙏🏻

I’ll be awaiting a response from you!! I pray that it’s so much better moving forward! 🩷🩷🩷🩷

Where do you have treatment? I’m at Yale Smilow in CT.

[Warrior77 in reply to CTGirl1962]

I grew up in CT! I'm in Florida now and get treatment at Orlando Health in Ocoee, FL. I adore my oncologist and his team.

I have a saint for a husband too. It's been hard, but I've learned to let go and let him do for me. I too maintain our household, so we talked about it, and I made a deal with him. He lets me continue as normal and I will ask him when I need help. It was odd at first, but it got easier when I realized that letting him do for me is letting him show me he loves me. Also, I'm retired and he still works, so I have all day to space out my household chores. That way it all gets done and I don't wear myself out. 😊

[CTGirl1962 in reply to Warrior77]

It sure helps being retired!! I am, too!! I lived in Ft. Myers for 14 years. Raised my son there and when I met my husband, moved back to CT. My son’s dad lives in Stuart. We love Florida, but staying in CT is what we need to do for now. We have my dad and his mom living with us. It is a motley crew for sure!!! I’m so happy we hooked up. I’m praying for better days. 🙏🏻🙏🏻🙏🏻🙏🏻🙏🏻🩷🩷🩷🩷

[mariootsi]

Praying you will start feeling better

[CTGirl1962 in reply to mariootsi]

Thank you, Marianne. This one is kicking my butt into the next stratosphere!! 😢

[mariootsi in reply to CTGirl1962]

Oh geez. IM SO SORRY. SENDING LOVE AND HUGS.

[Figletf]

When I get my Enhertu I feel bad for a few days after the pre meds wear off.ThenbI feel fatigue but no nausea or bowel problems

[CTGirl1962 in reply to Figletf]

How long does your fatigue last? I’m going on 5 days!!!