Starting Enhertu

[Figletf]

After failing to get Afinitor approved by insurance and not receiving any financial assistance from the manufacturer my oncologist has chosen to use Enhertu infusions.She says every three weeks.Also she says I have used all the types of pills available so if Enhertu fails I would need to look into trials.

I would like to hear from anyone who has been on Enhertu to kinda know what to expect.

I had given all my head coverings away thinking in 2019 I wouldn't need them again😩

[Silver126]

Afinitor didn’t work at all with me! I’ve read Enhertu is giving good results, so I think it’s worth trying it.

[Figletf in reply to Silver126]

Thanks for your input❤️

[love2golfwell]

Best wishes to you as you start this new treatment plan. Hope it works well with minimal or no side effects. Sending you hugs and prayers.

[Figletf in reply to love2golfwell]

Thank you so much.I am a bit anxious but I know the Lord will keep me in His peace.

[Fiercefighter13]

I'm so sorry to hear that you were not able to even try Afinitor. I will keep you in my good thoughts and prayers, may Enhertu work well for you and have minimal or no side effects. Take care.

[Figletf in reply to Fiercefighter13]

Thank you so much❤️

[Bettybuckets]

Wishing you a good run on Erhertu! What about taxol or vanilla bean… I think there might be a few more choices out there just maybe they will come after a clinical trial.

[Figletf in reply to Bettybuckets]

I had Taxol infusions when first diagnosed with metastatic BC in 2018.Not sure if Doc would return to that🙄My oncologist nephew is in BC research and tells me to never give up💜

Thank you for your reply.Continue to get well😘

[13plus]

Gee that’s so frustrating how insurance can determine our care options. I hope you go well on the Enhurtu and can stay with it for some time, I have heard good things about it too.

There are always new drugs coming out and being in a trial might be ok too, depending on the Stage it’s at, etc. Sometimes this actually gives you first free dibs at great new meds.

[Figletf in reply to 13plus]

Thank you for your encouragement 🤗💚

[Sewbeam]

I have had 3 treatments of Enhertu. It has brought my tumor markers to normal levels for the fist time in a couple of years so that is great. Will have PET in October, but I have faith it is doing a great job. I have had some hair loss. Most people can’t tell, but I put my hair in a ponytail most days and it is quite thin. I get steroid premeds and for three days after. The first week I am tired and somewhat nauseous. But I always have a number of great days prior to the next treatment. More good days than bad and I call that a win! Good luck, rest when you need to.

[Figletf in reply to Sewbeam]

Thank you for your encouraging reply .I am anxious about taking the Enhertu infusions because I already have Nueropathy from my Taxol infusions in 2018.I have seemingly no balance and stumble quite a bit😞

I also take meds for a heart skip and reading this is another possible serious side effect creates more anxiety.

The UNKNOWNS are always so darn scary .

My faith in God has kept me somewhat at peace ,and I am thankful. ❤️

I am happy that you seem to be doing well and I pray that you continue to improve 🙏🙏🙏

[Figletf in reply to Sewbeam]

Thanks...I am sitting in the infusion chair right now.I pray this drug will treat me as well as it has you💗👏👏

[Widdershins3]

Enhertu sent my bloodwork numbers plummeting--the results were simply amazing and unlike any other treatment I've had. But unfortunately I developed the worst side-effect (ground glass opacities in both lungs) and had to be taken off it, even after prednisone treatment. Broke my heart.

Now I'm on Xeloda and I cordially loathe it. I have hand&foot syndrome so bad--the pain is amazing. I had no idea my fingertips and toes/heels could hurt so much.

Enjoy the Enhertu--it was my best time since I found out I had mets and my wellbeing began to decline. It truly is a miracle drug.

[Figletf in reply to Widdershins3]

Oh,I am so sad that you had to stop the Enhertu 😞I was on Xeloda and had very dry cracked skin with H and F too.I found using silicone socks (you can buy on Amazon) definitely helped my dry feet.

I have Nueropathy from a previous course of Taxol when first diagnosed 2018 so my fingers and toes are numb😞

I just pray that the Enhertu does not make that any worse.I am constantly tripping and have very little balance now.

I hope things improve for you and Xeloda at least keeps you stable as it did me for awhile ❤️🙏

[Widdershins3]

Thank you so much for the silicone socks info. I thought I was buying those last month, but got ones with a normal knitted half-sock that's lined with the silicone. And even though I bought a size larger than my normal sock size, they're small enough that they put pressure on my inflamed toes and heels.

But when I looked them up this time using "silicone socks" to search, I found ones that are 100% soft, stretchy silicone. Thanks so much! Can't wait for them to get here.

[Figletf in reply to Widdershins3]

Mine definitely help .I still use them even though I had to stop Xeloda .My feet are still very dry but no longer cracked☺️I sometimes sleep in them so my feet are softened by morning.