Oops - my Oncologist mis-read latest CT Scan

[Sunnydrinking]

Well I rocked up at Windsor Hospital this morning after a sleepless night ready for my underarm ultrasound and biopsy!

The radiologist who had reported on my CT scan advised me that there has been a mistake and my Oncologist has mis-read the report. I definitely do not have a new axillary lymph node.

She advised there was a very tiny new spot on the liver worth investigating further and I am still awaiting Friday’s liver mri results.

So whilst there has been a “cock up” the news so far is good.

Fingers crossed 🤞 for good results from my liver MRI.

Stay safe.

Jo xx

[Barbteeth]

Hi Jo

So glad that the result was a good one but it doesn’t give you much faith does it?

When I had my gall bladder removed in March...the surgeon took a liver biopsy but didn’t tell or send the results to my oncologist...she had no idea it had been done...was only because I mentioned it...I vaguely remember him telling me when I was coming round from the anaesthetic....everything is so compartmentalised and separate In hospitals that sometimes communication breaks down

Anyway I sincerely hope the liver met remains small and you don’t have to change meds

All the best

Barb xx

[Sunnydrinking in reply to Barbteeth]

Hi Barb

Thanks for your reply - I’m still in a state of shock ... Hoping liver MRI results are ok now 🤞

I hope all is ok with you and that you are doing well on your meds.

Jo x

[Barbteeth in reply to Sunnydrinking]

Thanks Jo...I’m not sure as it’s early days...next injections on Friday ☹️

Love

Barb xx

[Hidden]

Hi Jo,

It is unnerving when a doctor gets something like a possible metastasis wrong. We put our trust in our medical team. You must be so relieved to learn that there has not been any spread to your axillary lymph node and that a biopsy is not needed. That's good news!

Hopefully the spot on your liver is not cancerous. I was misdiagnosed with liver metastases for nearly two years before I finally learned that they were haemangiomas (just blood vessels). So that could be what's going on in your liver too. When I had a full bone body scan and a PET CT scan every little thing lit up, even parts of my body where the cancer had not metastasised to. So there was my liver, which is clear of cancer. My womb and ovaries also showed something, which turned out to be uterine fibroids and ovarian cysts, all harmless, but alarming when you are facing the possibility of multiple areas of metastasis.

I hope you will receive good results!

Sophie x

[Sunnydrinking in reply to Hidden]

Hi Sophie

Thanks so much for your reply. I do feel in a much better place tonight.

Just hoping all ok with the liver MRI now 🤞

Jo xx

[Hidden in reply to Sunnydrinking]

Hi Jo,

You're welcome! All the best for your liver MRI tomorrow.

Sophie x

[Sunnydrinking in reply to Hidden]

Hi Sophie

I had the liver MRI last Friday - I’m awaiting results 🤞

Jo x

[Hidden in reply to Sunnydrinking]

Hi Jo,

Oh, I see! I misunderstood. I hope the results are good for you.

Sophie x

[Teddielottie]

Sorry you had to go through that this morning ...as if it’s not stressful enough ! Maybe ask for a copy of your ct radiography report ( I get mine from my GP but have to wait for it to come through ) Fingers crossed for your liver MRI results . x

[Sunnydrinking in reply to Teddielottie]

Hi

Thanks for your reply.

I usually get a copy of my scan results from my Oncologist. On this occasion they just called me out of the blue last Tuesday evening.

I’ve been worried all week. I even since had a letter from my Oncologist confirming the lymph node progression and need for ultrasound & biopsy.

Here’s hoping for good results following my liver MRI 🤞

Jo xx

[Sunnydrinking]

Hi

Thanks so much for your reply.

I still can’t quite believe what happened ..... it has however, worked in my favour so far.

Here’s hoping that my liver MRI results are ok. I did ask today but was told the report isn’t ready yet.

Gosh, having cancer is like being on a roller coaster.

I hope all is well - you really are such an asset to this forum and help us all so much. Thank you 🌸

Love Jo xx

[hopenowandtomorrow in reply to Sunnydrinking]

Praying for good results on Friday Jo! Sorry you had to endure so much unnecessary anxiety😢. 🙏❤️🙏

[Arisgram]

That is GREAT!! Hopefully the news will be just as good re your liver. Unfortunately, mine wasn't. Biopsy and treatment change for me....but maybe that improves your odds!! We can't all have bad news! So happy about your axilla.

Andi

[Teddielottie in reply to Arisgram]

Sorry you have had to come off Ibrance Andi , but wish you well with your next treatment ...hope it’s the one that does the job for you ! x

[Hidden in reply to Arisgram]

Andi,

I'm so sorry about the change. I do hope the next treatment works well for you!

Be well,

Lynn

[Sunnydrinking]

Hi Andi

Wishing you every success with your treatment change.

Whatever the outcome is with my recent liver mri I know, eventually, I will face a treatment change.......

Jo xx

[Hidden]

Jo,

I read your post earlier and was just shaking my head, could not think of a response! That's nuts!!! But nuts in the best way possible, I'm so happy for the turn of events and, wow, just in time! So glad they connected the dots!

[Sunnydrinking in reply to Hidden]

Hi

Having slept on this mistake....

I’m thinking, thank goodness it was the same radiologist that had produced my recent CT scan report, that I saw yesterday! I may well have had an unnecessary biopsy or would they have seen that there was a mistake once they did the ultrasound??

Hey ho, just waiting on the liver MRI - at least it feels like half the worry has now been lifted 😂

Jo x

[Hidden]

Great news.

Shame the Onc couldn’t tell you the self they had made a blunder. Hope they get the other results for you nice and quick.

Clare x

[Totheriver]

I hope your liver MRY results are good!!Theresa

[Hidden]

The cock up paid off thank goodness. Thing is we have to have faith in what we are told and it’s hard at times. Hope it’s all good news for you.

Best wishes

[mariootsi]

Fingers crossed, Jo! Happy for your good news and good luck with liver mri results!

[Arisgram]

Hey Jo! How was your MRI?

[Hidden]

It’s good that things are better than you thought but if I was you I would have been pretty cranky that he has misread the report. No need to scare you like that.