rash with ibrance : hi I’ve been... - SHARE Metastatic ...

SHARE Metastatic Breast Cancer

6,607 members8,142 posts

rash with ibrance

Jenhood profile image
9 Replies

hi

I’ve been taking ibrance with letrozole for a year now and I’ve developed a rash ,mostly across the breast / chest area .

My GP has prescribed some anti fungal cream !!

Has anyone else had a rash whilst taking these meds ? And if so ,what did your oncologist recommend?

I not spoken yet with mine, as I cannot get in touch with her over the weekend !!!

Love to hear from you and hope you can advise

Written by
Jenhood profile image
Jenhood
To view profiles and participate in discussions please or .
Read more about...
9 Replies
Trissh profile image
Trissh

Hi Jen. I am on the same meds and during last winter, I had a rash across chest, upper back and shoulders/upper arms. The dermatologist at my cancer center prescribed Triamcinolone Acetonide 0.1% ointment which I applied only to the rash areas. He also directed me to use only Dove sensitive skin soap, use only a gentle detergent like seventh generation free and clear. I saw improvement right away and rash was gone in about 2 weeks. I noticed since then if I wear something that was laundered before I changed detergents I see a spot or two. So I immediately dab it with the ointment and wash in the gentle detergent. All is fine! --Trish

Suzianna10 profile image
Suzianna10

I too have developed a rash over the past few weeks. Have been on letrazole and Ibrance 1year. Mentioned to oncology nurse one week ago who emailed my oncologist. She said the best thing would be to bring my CT scan forward just to be sure so I am scheduled for Thursday (lucky as there had been a cancellation) and have a face to face booked with my consultant for 11 days later x

8576 profile image
8576

I haven't been on that combination and so can't help with advice. You are on the right track though. So good luck with it.

Cheers, June S.

Crazycocker profile image
Crazycocker

Hi Jen, I have been on ibrance with letrozole for 2 1/2 years now. I can get a rash on my chest arms and neck. I have linked it to when those areas are exposed to the sun as my skin seems to be a little more sensitive now. My doctor and oncologist agreed as it seemed to clear with antihistamines, I was allowed up to 4 a day. I also use Piz Buin Allery lotion and it seems to help stop it coming up so bad, I also try and cover up when the sun is strong and stay in the shade. I also use sensitive skin soap and washing powder. I hope you can get it sorted and find what it is that is causing your reaction x

Teddielottie profile image
Teddielottie

Hi Jen. I have just seen this post and hope you have not been in discomfort all weekend . I thought I would let you know of my personal experience and how I tackled it , but as always , do discuss it with your GP, and oncology team. They may prescribe an antihistamine or other.

I am in the U.K. and have been on the same combination as you ( Ibrance/ Letrozole) for coming up to five years . I did have an itchy rash across my middle and side just over two and a half years ago , which lasted a good few weeks . But I haven’t had it since and I am still on the same combination a couple of years later.

My GP prescribed me a few tubes of cream :- Dermacool , menthol 2 % in aqueous cream (tho it is easily available to purchase online ) , and it did help soothe the itchy rash . But not to use it on broken skin !

Other things that I found helped were placing an ice pack wrapped in a thin cotton tea towel on the area , especially at night time , wearing loose cotton tops ( I wore my cotton vest ,seams inside out, to reduce the itching ), and showering the area only in cool water . I purchased some large dressings for extra protection too when out , as I tended to scratch (and I kept my nails very short !).

And as the other ladies have mentioned above only use products for sensitive skin / detergents etc and keep the area out of the sun . I also take vit D (Adcal) as prescribed by my oncologist. And also , a must for anyone on Ibrance , to drink lots of water !( even have a bottle by your bed) .

I hope you soon get it under control ! x

TammyCross profile image
TammyCross

I had a rash, mostly not itchy, across my torso on Ibrance. I was also on Fulvestrant. I had progression, and I went off both. I was surprised that my oncologist gave the rash (little bumps, hard to see, easy to feel) as the reason for taking me off Ibrance.

I have had skin reactions to just about everything during the years of my treatment. The worst was with Xgeva, eczema, really bad, but alas she didn't take me off that. I don't understand taking the rash so seriously after two years.

I keep being referred by oncology to a dermatologist. They do nothing, give me ointments (cortisone) that I use only when it is itchy, and tell me to moisturize like crazy. Two years later, on Verzenio and Arimidex, I have the rash again. It is occasionally itchy (like now, since you brought it up!).

I will try the other things -- detergent and I use Ivory soap, because I have always had skin reactions to sun and everything else and in my previous life, was told Ivory is the mildest. See a new dermatologist today. I think this is a permanent condition. I was briefly on Letrozole and went out in sun in early spring and got a severe burn. Switched to Arimidex and that no longer happens.

TammyCross profile image
TammyCross in reply to TammyCross

Update: dermatologist said it is not a rash, something else. I moisturize heavily but not on my torso, where I have the bumps. She said to start, that these cancer meds dry out the skin fiercely. She recommends also soaking in a warm bath with a cup of white vinegar, then pat dry and moisturize, 3 x/week. It is her own invention. We shall see. I have heard this before, that itching is due to dry skin. I never believed it, but they are consistent and this one offered a solution.

donnalynnhansel profile image
donnalynnhansel

No rash, just itching on head, eyes and nose. Starting second dose of ibrance tonight. I do put cerave' cream on my body for itching. Helps at present.

WhippetX2 profile image
WhippetX2

Yes, I am on Ibrance and do get occasional rashes on my shins. My onc suggested I take Zyrtec (an antihistamine) during the outbreak which does seem to help. I also put a cold pack on the area to calm it down when it gets really annoying, make sure to get 64 ozs. of water down and use mild soaps.

You may also like...

Anyone develop a rash with Ibrance/Letrozole?

during virus. So hope it’s not the ibrance and Letrozole as I’ve done well in them for 5 months...

Rash on chest on Ibrance-Letrozole

a light, dry rash on my chest that is quite sore and burns (vs itching). My oncologist doesn’t...

To be on Ibrance or not?

came back. My oncologist back in CA put me on Ibrance after surgery and radiation - Ibrance 2018...

Ibrance

neutrophils stable even on the lowest dose of Ibrance. I’ve been on my second round, after a...

Ibrance

I was on Ibrance 125mg - I take Letrozole 2.5mg and Denusomab every 6 months. My neutrophils below...