MBC and libido

[pinkbody2]

Im 47 w ER+ mbc. I love my husband dearly but have no desire to be intimate anymore. I had a full hysterectomy and am on letrozole which I know is where the problem lies. Is there anything out there that might help? I miss my husband and our intamcy.

[Lulu4545]

Hi, The treatment we take and the surgery we go through make it difficult.

There are lots of lubricants that could help.

I have the feeling that the longer you stay without doing anything, the more difficult it's going to be to get going again.

If it's difficult at the moment, just take it easy, go slow. Just try to get your bodies warm together again as a start and see how things feel from there.

Most women going through menopause have this problem. It's just a bit earlier for us...

Lovexxx

Lucie

[TwithBC in reply to Lulu4545]

lucie -- its so true, very good advice. " I have the feeling that the longer you stay without doing anything, the more difficult it's going to be to get going again."

LuLu4545--some ladies had some suggestions on another thread related to products to use that have really helped them; I have not taken the step to look into them. But There is another thread somewhere on this.

Best to you---and to all of us.

[TwithBC]

I am 49, full hysterectomy and Letrozole, too! (45 diagnosis and treatment). I am in the very same situation. I have ZERO. and for a few years maybe -- I could attempt to pretend for my marriage sake--but the last 1-2 years the pain is so excruciating that I can NOT even attempt. I don't know what to do either.

[pinkbody2]

Ugh! I know I’m not alone. Went to my gynecologist yesterday in hopes of a miracle libido drug. Of course I pretty much knew the answer. I’m taking bupropion for ADD and she said she puts her menapausal patients on it for libido all the time. She is having me up the dose to see if that helps. Just like what you both said she said. Her advice was to take it slow, be positive, and really focus on what is happening. She also suggested vaginal moisturizing every night. We have a get away to Vegas next week and I was having anxiety about his excitement for alone time and my not so much excitement. Gonna turn around my thoughts and hope for a bonding weekend in all aspects. She also said in the moment ask God for help. Not before but in the moment. We will see if my mind and a little prayer is the key.

[Nunky]

Hi zero libido girls - it’s just shite isn’t it? I’m 48 and had both boobs off and ovaries out in March 2020 - just as lockdown started . Widespread boney Mets and I’m in my 20th cycle of ibrance , letrozole and xgeva. So far so good but I find the fatigue overwhelming at times . Instant menopause an absolute bastard but with my 2 year anniversary approaching I’m pleased to report the hot flushes and sweats have eased considerably in frequency and intensity. I also take vagifem pessaries x3 week which help with comfort but not for sex. Zero desire and I’m now single so weirdly that’s made it easier and I just keep giving myself more time. It’s so hard -used to love sex - with myself and with others but think I’ve managed 3 orgasms in last 2 years . Not nearly enough !! Anyway - I’m Australian and a member of a Facebook group ‘Intimacy and Cancer’ and our founder has written a brilliant book. Full of tips and tricks and there are also online courses available that you can do alone or with your partner . Tess also has cancer and is an OT and a sex therapist I’ve included the link and I hope admins will allow - it’s not expensive and I found it really helpful . I wish you all well and much love xx amazon.com/dp/B09HX5DTDT

[Hidden]

Uber Lube is a good lubricant.

Others recommend adding an suppository a few days a week to maintain moisture.

Having said that, have you talked with your gynecologist for support? Unless we tell them, they can’t know how distressing it is.

Good luck

[Hidden in reply to Hidden]

My onc says this product is ok for vaginal moisturizer

try.hellobonafide.com/revar...

[PJBinMI]

My onc and gynecologist are both women and have been proactive for me. There are two hormone based products that can lessen vaginal shrinkage and dryness for those of us with E + bc. The one I opted for is compounded testosterone cream that is not covered by medical insurance. The other is something called E string. Compounding pharmacies can also make a cream that helps us have orgasms. I was already well into menopause when diagnosed. The pharmacy where I get these Rx meds phone number is 877-774-8757 and it's in the eastern time zone. You can get more info from them to pass along to your onc.

[TwithBC]

Wow I popped back on here — lots of great suggestions thanks so much for posting.

[Georgelila]

Whew am I relieved to be back after taking a break from the forum. So good to hear others are experiencing the same as me. Want to be intimate but zero interest and I know it’s good for marriage. Anyway thanks for all of these great tips and thoughts, it’s so nice to not feel alone .