New here - glad to discover this site! Thank you so much for these topics/threads. I have recently been dx w/ mBC after being in remission for almost 5 years. (now in Liver & bones as my arimidex stopped working) My head is spinning and trying to get info on Kisquali vs. Ibrance combo w/ Faslodex.
Just want to make the most of everything and be my own best advocate. Any advice or experiences to share would be most appreciated.
Hi,Welcome. I’m in both the mbc and uterine cancer communities.
I am also a swimmer and artistic swimmer. I noticed the Aqua in your name. Are you a swimmer too? Swimming really helps me with dealing with my emotions from having cancer.
Merma thanks so much for your reply! I LOVE the water and it has always soothed me. I can’t always splash in the pool, but a foot soak or looking at the ocean is always the next best thing. I must profess I’m not a swimmer, but the effect water has on my skin feels so tranquil. Meditation, yoga and Reiki are wonderful tools for me as well.
Welcome to this forum, Aquamoron (why this username?).
I have extensive mets in most organs (lungs, spleen, liver, lymph nodes, skin) and bones but not the brain. Fortunately, I am old (76 yrs.), and my ER+ HER2- cancer seems to be slow-growing. I did very well on double tamoxifen for the first year after diagnosis (2019) but then my oncologist refused to represcribe it.
I am most concerned with my quality of life so I insisted on starting on 200 mg (lowest dose) of Kisqali (with letrozole) to check on what it was likely to do to my white blood cells. It did reduce their levels, but not drastically so I moved on to 400 mg. I will complete the third cycle of 400 mg this coming month and a CT scan thereafter will tell me whether the letrozole (with the assistance of the targeted drug) is able to control my mets.
In retrospect, I wish I had complete six months on letrozole by itself to see whether I needed the Kisqali in the first place (many people do not). Whatever, please feel free to ask me for any further details if these might be of use to you.
Warm wishes, and I hope you receive many responses,
Hugs,
Cindy
Thanks Cindy. Your journey sounds tough, but I can tell that you are a warrior and not afraid to advocate for what you want. Bless you. I am realizing that unlike my previous chemo, this is in tablet form and can be easily tweaked. Thank goodness for that. I start the Ibrance today and had my 2nd Faslodex shot this am so will hopefully manage beautifully.
Welcome! There are amazing women here. Always feel free to ask many questions and be a strong advocate for yourself.
Be an advocate for yourself. Ask questions. F you are not happy with your care don't be afraid to get second opinions. It's a good idea to reach out to others in your geographic area because they may know about resources and people you may need. As always, glad you found us, sad that you needed to. ❤🌺❤
Thanks Sandra. Did not know about the pomegranate and Seville oranges, but now I do! Faslodex 2nd shot was today and wasn’t as painful an injection as the 1st 2 weeks ago. (I stood with one knee on a chair and it helped) Met with a new onc. who indicated that a tablet form of this little demon is in the works- hopefully will be FDA approved in a year or so. That would be a beautiful thing. Starting Ibrance tonight @ 125mg. Drinking lots of water. Lots.
Welcome on here and I wish you well as you start your Ibrance treatment! I am 58, in the U.K. and have been taking Ibrance for just over 4 years. I am still on the 125mg dose and have tolerated the side effects pretty well (so far !). I take mine straight after my main evening meal , with lots of water (I even have a bottle with me at night ! ). I have had various side effects over the years , but have always found a way to overcome them , with lots of advice from the lovely ladies on here , so do ask if there is anything bothering you , as there is always someone here who has had the same experience . Take care! x 🌷
Welcome to this great group! If you go on Ibrance I have found taking it at night is much better, with dinner and a full stomach.
Best wishes for you and your journey!
Thank you so much. I had heard this and am taking directly after dinner. So far, so good. Grateful to have found this site and all you lovely contributors. Bless you all.
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