I am new here

[Stili]

Hi everyone.I have HER2 + breast cancer,which has spread to my bones and liver.I had 6 cycles of chemotherapy(trastuzumab, pertuzumab and docetaxel).Now they give me an injection every 3 weeks (Pertuzumab and Trastuzumab).

I will be happy if someone shares their experience with this treatment

Best wishes

[Ardie1970]

Welcome to the group no one wants to join but is full of the best people on earth! I am not HER2+ but I am sure you will find lots of support here.

[Stili in reply to Ardie1970]

I have been on board since May 2021I was shocked and didn't want to talk about my cancer.

Now I have accepted my cancer and will fight like many others here.

This group is great! So positive and supportive!

let's fight together.

Very best wishes xxx

[IAMALIVE33]

Hi Stili I’m on the same treatment but a little behind you just doing the chemo combo. Finding it really hard and much tougher than my original treatment of FEC back in 2014. I have bone mets that are very painful - did yours improve with the chemo? And lung mets. I will let you know how it goes and would like to hear from you too.

Fran

[Stili in reply to IAMALIVE33]

Hi Fran! After the third chemo I had a scans that showed a good response to treatment.I had back pain before chemo started. During the chemo the pain disappeared.

On December 23 I will have a scan again.

I pray for good news.

Very best wishes to you xxx

[poppypug]

Hi Welcome ! I was diagnosed in December 2020 straight to Stage 4 with mets to lung and liver and have had exactly the same treatment as you along with Letrozole.

My last scans showed a complete response to treatment and no evidence of active disease in all my organs .

Hold on to hope and all the very best to you x

[Stili in reply to poppypug]

Thanks for the reply. This is very encouraging.I will have a scan on December 23.I hope for good news.My last scans in August showed good response to treatment but now I start to worry.Best wishes to you xxx

[Andersl]

Stage 4, Jan 2019. Liver, brain, spine, lungs, mediastinum.

After failing 1st line treatment, put onto Kadcyla. That's all I've had for 21 cycles.

Dec 2021, no evidence of disease in body though 4 small mets appeared in brain in July. I then had Gamma radiosurgery. Symptoms have gone so I assume all OK though scans are ìn January.

I had no expectation of living 2 years post diagnosis!

I have no side effects of treatment apart from fatigue. I do have quite a few other conditions that affect my day to day life but I'm managing.

Don't assume, as I did, that you won't be around for long. We will always have disease popping up somewhere but there are great treatments out there.

Xx

[Debbigbang]

Good morning

Welcome to the group. You will find lots of support here ❤. My diagnose was Mets BC in May after left breast masectomy. Was 1day away from chemo, once mine turned to mbc my onocologyst put me on Ibrance and letrozole. I am on my6th cycle. Small bone leisions are healing. The liver is still growing. Keeping me on medication until my next CT scan in Jan. If still growing will move to another medication. I get nervous switching meds as this game is sticking with first line of treatment and hope it works a very long time. But, forever the optimist and positive. I Meditate to establish a balance . I do not let fear control me as it really is a wasted emotion. Life will unroll how it will be. You will find everybody's diagnosis is similar, however treatments very. Make sure you don't put all your eggs in one basket and use a tool kit full of treatments. This is a a journey. You either let it create a new you or you let it destroy you. I can tell you 100% I am not the same person I was a year ago. I have learned more about myself and what I am made of then any other time in my life.

Stay strong and never give up on you ❤🙏

Deb

[EZSZ]

Hello Stili. I am TPBC - triple positive breast cancer. I've began treatments, exactly same as yours plus tamoxifen .I react well to treatment, and hope to be NED (no evidence of disease) soon.I would like to give you a couple of practical advices: eat chicken/beef liver 2-3 times a week. That will maintain your hemoglobin/ hematocrit at normal levels. Doing wheatgrass daily, as it is a great detoxifying as well as very nutritious.

There are many women with TP, or Her2+ who undergo the immunotherapy every 3 weeks, and they've been around for 5,6,7 - 9,10 and even 16 years. A lady in this forum shared that she's been on Herceptin since 2005! So, there are side effects, which are different to each and every one of us, but they are manageable. The important thing to remember is that you can live many years, there ain't no telling how many, due to the immunotherapy. So please cheer up, and try to live a normal life in between treatments. Best either, dully

[Thatflowerlady]

Hi Stili welcome to this board of amazing , knowledgeable people willing to share their experiences & knowledge. We are on the same treatment , I am also triple positive . I finished the Paclitaxel in May 2021 and continue with the every 3 week infusion of herceptin & perjeta. I have MBC that has spread to lungs , bones and liver . I have had pain in my sacrum area for the past couple years , I finally said yes to 1 treatment of radiation last week , it has helped so much already ( should have done it sooner 😉 )

If you have any questions let me know . I was re diagnosed 5.5 years ago . My quality of life is good .

I hope you are getting stronger since your chemo , it takes a little time .

Luann

[PJBinMI]

Welcome! I'm sorry you need t be here, but glad you found us! I have had bone mets since diagnosis with bc, in March 2004. Not her2neu + but one of the first women I met with mbc had liver mets and was her2neu +. She did not look sick then, worked about three days a week in her husband's insurance office and baby sat their tiny grandson on the other days. She lived for 13 years with metastatic disease and alot of us (including our oncologist) thought she would have lived longer, but her daughter died suddenly and unexpectedly from a brain aneurysm about a year before she died. That was devastating for her and she lost her "sparkle" and lost interest in almost everything. I think she wanted to die and be with her daughter. But her longevity still impressed us. I hope you will do really well, too. Some of us do!

[mariootsi]

Welcome and I pray for success with your treatment.

[Delroes]

Hi I have had same treatment as you for 8 cycles. Her2 with Mestastised to liver

Half way scan showed amazing shrinkage in my tumours.

End of chemo scan showed reduction in all tumours in breast and liver.

Had very little side effects - just tired and loss of taste for the week after. Loss my hair and eyelashes but kept my eyebrows. Very grateful I got thru chemo with only a few issues. Have finished chemo but now carrying a lot of fluid in my feet which is making it hard to walk around.

They are going to start me on letrozole now - but scared of side effects so will wait too til after Xmas to start it.

Goodluck hun 🤞🏽