Hi Everyone, I’ve been lurking awhile not ready to post. This is my second board I’ve joined. I’ll go to the other boards every once in awhile to read. However, honestly...I found some negative—and I just don’t need that now. I want to stay positive. I am “living” with stage 4 breast cancer. I am also reading “spontaneous healing” and joined radical remission project board.
I was diagnosed Jan 30. I was having irregular bleeding. Two negative endometrial biopsies. Then they ran a Pap Smear although I was 4 months away from the annual. It confirmed BC cells on cervix. Tests, scans and biopsies confirm metastasis to bones and scalp.
I’m 46. Original diagnosis was stage 2 ER/PR + and Her2negative. Lumpectomy and radiation. Oncotype score was 26. I had a 15% chance of recurrence. That would be 13% chance if I did chemo. I did not.
Started shots in February of folsadex. Just added Xgeva in March. Expecting to take Ibrance and letrozole starting next week. Just recently started w muscle and bone tightness. I wouldn’t call it pain. Just feels like I overworked at gym. Walking or stretching do help it. I think the xgeva is making me itch. It’s been the past 10 days. I got the shot about 20 days ago. But I also have an autoimmune disease of liver PBC. So that has itching side effects but I haven’t had that effect for 2 years.
My favorite words right now? “I love you” and “you got this!”. Praying for all of us.