Hi Everyone, I’ve been lurking awhile not ready to post. This is my second board I’ve joined. I’ll go to the other boards every once in awhile to read. However, honestly...I found some negative—and I just don’t need that now. I want to stay positive. I am “living” with stage 4 breast cancer. I am also reading “spontaneous healing” and joined radical remission project board.
I was diagnosed Jan 30. I was having irregular bleeding. Two negative endometrial biopsies. Then they ran a Pap Smear although I was 4 months away from the annual. It confirmed BC cells on cervix. Tests, scans and biopsies confirm metastasis to bones and scalp.
I’m 46. Original diagnosis was stage 2 ER/PR + and Her2negative. Lumpectomy and radiation. Oncotype score was 26. I had a 15% chance of recurrence. That would be 13% chance if I did chemo. I did not.
Started shots in February of folsadex. Just added Xgeva in March. Expecting to take Ibrance and letrozole starting next week. Just recently started w muscle and bone tightness. I wouldn’t call it pain. Just feels like I overworked at gym. Walking or stretching do help it. I think the xgeva is making me itch. It’s been the past 10 days. I got the shot about 20 days ago. But I also have an autoimmune disease of liver PBC. So that has itching side effects but I haven’t had that effect for 2 years.
My favorite words right now? “I love you” and “you got this!”. Praying for all of us.
Written by
Snowcone16
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Welcome to the group, Ivjust joined about a month ago. But it has made me feel so much better as most people are so positive. Yes we have mbc but that does not mean we are going to die tomorrow. And believe me that is what I thought when I was diagnosed in 2016. Now I am hearing from people who have been living with this for 14-20 yrs. I can now relax and try to enjoy whatever time I have. I also take Ibrance, xgeva, and just started faslodex. Hope you enjoy the group.
Welcome! I love the photo, and it is a great quote to keep in mind every day. I am Stage 4 Breast MB spread to liver. I am on chemo now, indefinitely. Fighting for every day, but so far, kicking butt! A positive attitude is huge. You, me and all of us “got this”! 💖
Welcome to the group. I try to stay positive also. Yesterday I had a down day and your post has snapped me back into thinking positive. Good luck to you. Hoping your good attitude gives you good results. I will tell you a positive story. My stepfather had esophageal cancer. He was diagnosed while in the hospital. His doctor called the oncologist on call and told him he had a patient who was “comfort measures only”. The oncologist came to the hospital and asked my stepdad if he understood that esaphageal cancer was not an easy cancer and that in his case they couldn’t do surgery because of his other medical conditions. He told him all the options and my stepdad said he wanted to fight to get well. So they proceeded with chemo and radiation. All the while my stepdad had the most amazing attitude of anyone I have ever seen. Just trusting in his doctor and trusting he would get well. It was a long battle, but he eventually beat esophageal cancer and lived 7 years before dying from something totally unrelated to cancer. I truly believe his attitude made all the difference.
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Former art teacher with a passion for travel
Lowering Ibrance dose 
New here but have a question
New Treatment Plan
New to this site.
