I have met so many nice , giving ,loving and strong woman on this site that I consider friends . I am so happy to have a place to go to cry , laugh , learn and truly feel cared about . If I could be of help to anyone never hesitate. My name is Stacy. I have ER/PR positive metastatic stage 4 breast cancer which has spread to my bones / ribs only . I was diagnosed 2015, stage 2 grade 3 tumor, I had double mastectomy, no reconstruction . I knew I was doomed with that grade on the original tumor . I was right . I am now taking Verzenio for 3 years , zometa and faslodex. I am being switched to Xgeva from zometa . My pet scan 2 months ago was clear , no sign of metastatic disease or recurrence. I’m hear for anyone with questions or fears . I’m a wreck at times but able to help ❤️🌹🙏🥰 good luck my friends , love and prayers to all .
Thank you my friends 🌹❤️🥰 - SHARE Metastatic ...
Thank you my friends 🌹❤️🥰
That’s so sweet. I find the site so helpful with everything. We can even have a joke with each other to lift ourselves.Take care and keep posting.
Yes we can , are u doing ok ? I’m metastatic stage 4 now , waiting to see if this new drug called ErSO will ever go to trials . That’s the most promising drug yet if it’s true everything I read 👏🏼🙏😘
Let’s hope so but not sure our NHS in the UK will fund it. I’m doing ok thank you.
Hi Stacy, It sounds like you are doing very well Why are they switching you from Zometa to iBrance?
Hi Stacy; Many of us have found friends and support and just general, helpful information here. Glad you joined us and are doing well.
Cheers, June S.
Love and prayers to you Stacy!
That’s awesome 👏🏼 ❤️🌹
Hi there
I am with you, it is so nice to have so many people ready to share kind words of support and their experiences with others who are going through the various health issues, such a great team. I have to say, it is like being given the chance to talk among family and friends with so much in common which is pretty cool. I had a mastectomy in 2018 so can only imagine what it is like to have a double mastectomy. I hope you don't mind me asking but are you going to have reconstruction at all or are you comfortable just as you are? I know some women do decide not to go for reconstruction. I was supposed to have reconstruction last year but was diagnosed with MBC spreading to my hip so the reconstruction was put on hold. Furthermore, I suffer from lymphoedema in my right arm so I find it quite difficult at times to find tops to fit due to the size of my arm, it can be quite frustrating but I live in hope. I didn't have much on today so I thought I would have a look on the site and give some encouragement to some lovely ladies, bye for now and take care. Reen.
Hi 🌹I went to a few reconstruction doctors and made the decision after talking to one of his nurses. She said if it were me I would stay flat. I asked her why and she said because of comfort. I said it won’t be comfortable to Have the breasts . She said I will be honest and probably lose my job but I can’t look in your eyes and tell you it’s going to be a breeze. It will be painful and never feel like your old ones . I said thanks I walked out and I never thought about it again. She was right I am very comfortable being flat. I wear a bra with inserts I feel very real they were expensive. And when I come home I can’t wait to rip a bra off just like I used to and then I have nothing hanging around which I hated. I love being flat. I bought some bathing suits that were also expensive and I had them put in and stuff the breast area professionally and when I wear a bathing suit I have three of them they’re beautiful. No one knows except for my boyfriend. He told me when he hugs me now it’s such a close hug and he loves it. So that’s my story about no reconstruction and staying flat it’s just my opinion. 🌹
Hi Grebnesie
Thank you for that I am happy you are comfortable with your decision to remain flat and hats off to you. In my case because it is just the one side I want to be more aligned instead of lopsided which can be at bit of a bugbear at times. If I have to go for a scan sitting in the hospital waiting room in my gown with others around can feel uncomfortable as the prothesis has to be removed. I usually have a scarf that I can use to wrap around myself to avoid stares.
I completely understand and would have done the same thing. I only had it in one breast I opted to take them both off so I would be even.
I must so you are very brave to have done that but whatever floats your boat go with it.
Lung Metz
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Tooth extraction after receiving Zometa?
Hi! Lobular BC with bone mets....
