I am new here.....well sort of. I am more on the shy side, (this is my first post), so please bear with me. I was diagnosed metastatic in July 2020, mets to liver, sternum, and some lymph nodes. I joined this group at that time. It has taken me a long while to come to terms with having MBC. I would hop on here from time to time and read your posts, all the while, trying to get over the shock of this. I found myself coming to this site more and more. I do want to say THANK YOU from the bottom of my heart! I felt like I was drowning -overwhelmed and scared. All of you have helped me to get over the shock and numbness I have felt. And, because of you all, I don’t feel alone and I am hopeful! Your strength and courage has now given me strength and courage! I have learned so much from what you have shared. I am looking forward to getting to know all of you and for you to get to know me, and I am hoping to contribute whenever I can. Again, A Big THANK YOU!
p.s. I was on Ibrance/Faslodex/Zometa for a year. I am now on Keytruda/Abraxane/Zometa
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Missmaddie615
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This IS a great group of women from all over the world. Your post was very nice, and I agree, there is a tremendous amount of knowledge to gain from everyone here. I learn something new from every post I read.
Welcome! This is a wonderful place for information and sharing. I wish I would have known of this site earlier. After my diagnosis in 2016, I literally trembled for a month. This group would have helped enormously. My onc was surprised when I told her about this group. My town doesn’t have enough support groups according to me and on here we can communicate 24/7. Thank you all!
This group has helped me keep my sanity! Thanks for the warm welcome!
This is a great group , supportive and knowledgeable. And another bonus is this site is easy to navigate and search for information . I am looking forward to seeing your post .
Thank you so much, sending love your way! And yes, may all of us have long, long success with our treatment!
Hi,
Welcome to this group! I’m glad you feel able to share about your diagnosis and engage with other ladies on here. I’ve been on a break for a while, but I do still pop along from time to time.
You're welcome! I am naturally shy too, so I understand how hard it can be to engage with people. I've had to really make a big effort to try and be more outgoing over the years. I meant that I have taken a break from this site. I've not actually been anywhere since January 2020. ☺️
Yes, I absolutely get where you’re coming from. My husband is the social one. He has been encouraging me and helping me to be more social. For me, it can be mentally exhausting at times! We haven’t traveled since Covid began -trying not to catch the Rona!
It’s funny you should say that because when my husband and I first met you would have looked at us and seen polar opposites and wondered why we clicked! He was an extrovert, got along well with everyone and never felt socially awkward. I was shy and more of an introvert , but I have changed over time. Now I often organise social gatherings, meet up with friends, have people over and am always on Zoom catching up with people. Once you overcome the shyness hurdle life really does get easier! But I do understand that it can be mentally exhausting to reach out and step out of your comfort zone. Even little steps can help. Just try focusing more on other people and show an interest in them. They will warm to you more readily. ☺️
Thanks -good advice! My husband, like yours is an extrovert and everybody loves him. He can talk to a tree. I have always envied people that have the ‘gift of gab‘.
Thank you..and you’re welcome! This is a wonderful group of women who bring in knowledge, experience and compassion from throughout the world. Different countries have different treatment protocols and this is an important forum for learning new information and sharing experiences. Some of us have medical backgrounds which are helpful to explain and decipher the cryptic messages from oncologists and specialists…others can share their experiences and compassionate advice to help us navigate the terrifying waters of our diagnosis. When I have an AHA! Moment or a cry for help, there is always someone…many someones….who can step in and talk me off the ledge.
A belated welcome from me too ... have been taking a break from technology and getting out and about in recent weeks (during the recent good weather ). I had my results recently and all was good , so decided to travel as much as pos within the U.K. , as staycationing this year ...while taking all necessary Covid precautions.
My extended family have been hit by Covid in the last couple of weeks, but thankfully are on the road to recovery now . So take care everyone out there as it’s not quite over yet ...with the Delta variant being highly transmissible. x ❤️
Thanks for your welcome! I often take breaks from technology. I’m happy to hear that your recent results are all good!
So sorry to hear that your family has been hit by Covid. We just found out today that my husband had direct exposure to somebody (a co-worker), who has Covid! Both my husband and myself have been vaccinated, and the person who has Covid has also been vaccinated. My husband went and got tested, we should have the results Tuesday. I have banished my husband to the basement and he’ll be living there for a while! Probably too late for that... i’m freaking out!
To know you have somewhere to turn to and not have to explain about MBC and the issues that come with it is a lifeline in itself to me.Sometimes I feel there are 2 worlds , this site being one where I fit in, I am understood can be myself, and the other world where I used to fit in but now find myself often looking in from the outside, not sure if I’m making sense but since being diagnosed my life is different, not better , not worse but different. I always look forward to reading posts and the help I have received is priceless. Without friends on this site life would be much much less quality.Debra xxx
Thanks for the warm welcome! Looking forward to getting to know you too and the rest of the ladies!
Sorry for the late reply. Welcome aboard. It often takes a good while to get your head around diagnosis and getting the courage up to reach out. So well done, you are here now and will be a valuable member to us all.This Delta variant is quite prolific now. I have heard of families here in the Uk succumbing to it, fortunately they are unwell with flu like symptoms for a week or 2 but not hospitalised. Hope your husband’s results are negative.
Welcome. I felt the same way 3 and 1/2 years ago when I discovered my cancer had returned after 15 years. I was sure I would die but this site helped me to come to terms with having MBC. I now look at my illness as something which is treatable and it sure helps to read all of these scenarios online. There is much knowledge to be gained from reading these posts.
Welcome Welcome Miss Maddie! My 4 year old great niece once said to me, as a response to my mentioning that I was “too shy” to do something. “Being shy is just a waste of time Aunty Chrissie”
Since then I have been much more brave. I hope you will be too, because we here are all in this together.
I agree with you that there are some wonderful things about this site, and I don’t know what I would have done without it sometimes in my 3 year journey. You must use us whenever you need to. Someone here will have some words of wisdom for you.
I have been helped by one person or another over and over again. Even if it’s just been because they have replied to me.
Thank you for welcoming me Chris! Your 4 yr old great niece is wise beyond her years! I’m trying to put myself out there (something new to me), so thanks for your words of support!
Hi Miss Maddie: Welcome to our wonderfully diverse group of MBC women! We are here to support & share openly with each other. The practical education & emotional support we get is invaluable. Glad you reached out!
Hello I'm glad you found this wonderful group of warriors . I have found a lot of great advise and information on here and also piece of mind and great stories that gave me hope . I check in daily while I'm working and read all the post to get strength to make it thru the day lol. I wish you well and stay in touch . This group is a life saver in many ways
i have the same set of symptoms as you. I was diagnosed with MBC in March. Initially I had radiation treatment for the tumour on my sternum - and that seemed to work well. And I am also on Fulverstrant, Kisqali and xogeva. So far so good. I love the support of the other women in this group. So responsive and helpful and I feel less alone. .
Thanks for your response! I’m happy to hear that your current treatment is working so well for you -may it continue to do so! Interesting that you had radiation to your sternum. I mentioned it to my onc and she said at this moment, no. Were you having pain there?
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Good-bye and thank you all
A pity party fixed by our shared forum. Thank you!
Zometa and increased kidney levels
My results after a year of being on Ibrance 125 mg
