It wasn’t good news at the hospital this morning! I’m still showing progression in my liver. F**k cancer! All that weekly taxol chemo I’ve been through and I’m still showing progression - I’m well p****d off!
On a positive note …. 😃it’s kept all other mets stable 👍 and I still have treatment options to try. 👍 I’m going to give Epirubicin a go starting next week. Let’s hope it’s successful 🤞
I’m fine, had a few tears 😭 & then I get on with enjoying life & can have holiday breaks whenever I want x 👍 🌸💕
Jo xx
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Sunnydrinking
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I am so sorry to hear about your damn liver Mets are not responding to the taxol treatments Jo .It’s very disappointing when we go through a treatment that has some unpleasant side effects and it doesn’t work .
I hope the Epirubicin is effective for you and you have Mimi all side effects .
Your attitude sounds so positive !
Keep us posted .
Luann
I'm so sorry! Those set backs are devastating to hear! I admire your mindset and attitude. Gotta stay positive and enjoy our moments....on to the next treatment, full of positivity and prayers for great success!!Anja
It’s so unfair this cancer and how much we have to endure to lead the life we see others taking so much for granted, but good on you for being so positive and looking forward, enjoy your breaks away. Thinking of you with love and hope and good luck with new treatments, keeping my fingers Xs for you. XxxDebra
So sorry to hear that you liver mets progressed. The silver lining is that the other mets are stable, so the chemo works to certain degree. Will Y90 be an option for you? Seem to be quite efficacious with minimal side effects if any.
Sending you good vibes!
All we have is today!
Hi JoI have been thinking of you throughout summer.
Damn your liver. Hopefully this next treatment will strike the right spots.
You do sound in a much better frame of mind now, and ready for the next step.
Morning Jo! Just to let you know that I am thinking of you and wishing you well as you start Epirubicin . Keep planning and taking those lovely breaks ...something to look forward to ! sending 💕 x
Drat...but keep on keeping on with your sunny attitude about enjoying what you can. Also, since humor helps...I knew there was a reason I never liked to eat liver. Whenever I heard people mention it I think of it being served to me with onions as a child...or the scene in Silence of the Lambs with Anthony Hopkins. In sincerity, here is to the next treatment working!
Hi Jo. So sorry you had to go through this again with treatment. It amazes me how this illness can change so quickly.
I had bad news also. I have new shadows on my liver which I didn’t have before. My treatment (Ibrance and Letrozole) have stopped working. So, I have been on a drug free week ready to start new treatment next Wednesday if my blood results are good.
My Oncologist was as shocked as I was as for 28months my liver function, blood, bone and lung metastasis have been stable.
So I will be with you on this journey Jo. I know exactly what you are feeling and going through. We have to remind ourselves we are living with this bastard thing and have to enjoy (if we can) every day of our lives.
Happy to hear that other mets are stable, but it sucks about the liver! Good luck with your next treatment and here’s hoping that this is going to be the one that will kick cancers butt! Love your positive attitude and YES, enjoy your holidays whenever you can!
I am sorry to hear that the taxol did not help the liver mets. Wondering whether you might consider localized therapy in addition to systemic therapy (list below from my book, 'The Insider's Guide to Metastatic Breast Cancer"):
• Ablative Therapies
o Cryotherapy
o NanoKnife
o RadioFrequency Ablation (RFA)
• DEBDOX
• HAI Chemotherapy
• NKTR-102 (Etirinotecan Pegol) (Not Yet FDA-Approved for MBC Patients)
• Radioembolization or SIRT/Yttrium 90 Microspheres (Theraspheres)
Thanks for your reply. I did suggest to my Oncologist zapping the liver mets but she said there are too many at the moment but they may consider zapping the biggest which is 5cm in the future if they can see some stability or reduction…
My Oncologist also suggested if I wanted to stop treatment at any time she would understand…. whilst I absolutely hate chemo, I want to live …
Jo, I'm so sorry. I hope your next therapy is more effective. My radiation oncologist suggested SBRT for the 2 isolated liver mets and wanted to hold Y90 for more widespread disease. Hopefully you can knock them back enough to try it. Know you have lots of good thoughts coming your way. I just hate it for you. Andi
Yes, I understand. I'm feeling like Verzenio is not going to be a good fit, so I'm expecting Taxol in the near future and looking further ahead to those treatments Bestbird outlined. I've even ordered fenbendazole. My fingers are crossed for you on the minimal side effects front. Didn't you try the cold cap? If so, did you keep your hair? I'm struggling with the prospect of losing mine more than I thought I would. Sigh
Yes, I did cold cap every week for 4 months & whilst it meant longer in the chemo chair, I’m so pleased to have kept all my hair, it’s actually got thicker …. I highly recommend the cold cap / the first 10 mins aren’t pleasant but then it’s fine. I found zipping a hot drink during the first 10 mins really helped 👍. I wish you all the very best & please keep in touch. Jo xx
So sorry to hear the bad news in your post...but yes, hang on to the fact that other things are stable and you have more ammunition in your bunker. A recent visit to a medical oncologist who is conducting trials in Dartmouth Hitchcock Medical hospital... she was very supportive and helpful, saying that there are scores of different treatments out there, and more coming down the pike. It's a very exciting time in medical oncology (well, for the doctors, at least). So don't give up! One hundred years ago...even less, we would have been gonzo...we still have a life ahead now. Best of luck!
Yes, you are so right - there are still options in the tool box but I really feel my liver progression is proving to be a challenge!. I next see my Onc on Thursday with the view to starting weekly EPI on Friday … in the meantime I’m researching etc so I go armed with many questions/suggestions etc.
I’ve now had two weekly infusions of Epirubicin. I’m not suffering any effects from the chemo but the anti sickness meds have caused constipation. I’m trying to reduce the dosage, along with a high fibre diet with plenty of liquorice! Cancer certainly is the disease that keeps on giving 😂
So in summary, it’s tolerable so far & I’m feeling well.
I just hope this treatment works on my liver mets & keeps everything else stable.
My weekly chemo Fridays are not good, but if one difficult day a week allows me six good days, I feel it’s worth it.
I am doing well thank you , I have scans coming up at the end of September so I will know more then . Scaniety is starting already . I am afraid I have the opposite side effect from the Herceptin that you are having with your treatment . As you mentioned cancer & treatments just keeps on giving . When do you have scans again or how do they monitor your liver Mets response to the Epirubicin ?
May I ask if you have symptoms from the liver Mets and if so what they are ?
I’m not experiencing any symptoms at all from the liver mets or indeed any of my mets to be honest!
I guess they will do a scan again in two to three months. Just imagine how anxious I will be as my last three treatment lines have not worked on my liver ….. hey ho, no amount of worrying changes things.
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