Hi ladies. I have found that this site has been very interesting lately. I thought I knew a lot about mbc but I know very little. I just received my pet scan results yesterday and it's not good. Xeloda stopped working and my bone cancer has progressed in multiple areas now ,too many to list. I'm going to start bravnav iv
Next week. My onc said no more oral chemo going forward. Has anyone been on this iv ? If you could I would love to know some history on this drug. I'm just sad today.
Take care. Stay safe God bless
Shelby
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Oh Shelby, I’m sad too. I get sad anytime someone has a bad scan report. You will work through it, I’m sure, because we all have strong cores, but sometimes we need a little time to process and mourn for what we wanted. I don’t know a thing about your upcoming treatment but I didn’t want you hanging out here alone tonight. Hugs, Elaine
Thanks Elaine. You said exactly what I needed to hear ... Accept.... Mourn ....adjust....I knew I was getting worse but did not want to accept . Thanks again tomorrow will be a better day .
I did some research on this med. Has your onc mentioned that this med is also available as an oral pill; equally effective to infusion.
Also, should be preceded by an anti-nausea pill to prevent that side effect.
Good luck and God bless you, sweet sister!
XXOO Linda
I understand your sadness. I was on Ibrance for two years but my last bone scan showed multiple new bone Mets so I started Chemo yesterday. Like you, it’s easier to say what bones aren’t affected than what are. I’m getting a different chemo drug. I was scare and sad and a whole lot of other emotions. I can tell you the chemo nurses at my hospital were amazing yesterday. So friendly and they really helped me relax. I hope someone else has had experience with themed you will be getting. It’s a shock to hear the word progression but we are hear to listen and support you.❤️ Sarah
I have been reading your posts lately. I was waiting to hear how your first day went. I'm glad that it went well for you. I'm not worried about the iv process as I went thought that years ago . It's the 2nd bc that I can't get control of. I have not received a pet scan that has not reported progression so I do hope this chemo will work. The oncologist told me that if it doesn't work we could try a stronger one, but each time it gets more toxic. I guess that is where quality of life comes in.My original onc doctor has gone off on maturnity leave and my family doctor has taken time off due to covid Both will be back in October . I sure do miss them .God willing I will be here too. 🙏🏻Please💕 keep us informed on how you will be making out with your chemo shelby
My heart hurts for you. My last couple of scans showed some progression but my oncologist wasn’t worried he said until the last one that showed a lot. I think we waited too long but this is my first time while he is the expert. It must be hard with doctors that you don’t know , this Covid has ruined so many lives in so many ways. I will be thinking of you and please stay in touch. I e done nothing but sleep today. It’s lunch time and I’m just awake enough to have some fruit and yogurt. Can’t keep my eyes open but that is likely normal. ❤️. Sarah
Sarah, just want to share that I also get very sleepy for a few days after my infusion. It usually starts later the second day and lasts 2-3 days. Sleep when you feel like it, try to keep eating at least something whenever you can and, when you do feel a little energetic, don't try to do too much (like I always do!). It will pass. Thank you for keeping us updated!
I am not familiar with this drug, but I just wanted you to know I am thinking of you and hoping that you cope well with chemotherapy. I hope that you have lots of support at home and from your medical team as you move forward with your new treatment. Let’s hope it works well for you and stops the cancer in its tracks.
I sure hope it stops it in it tracks. The technical name for this drug is vinorelbine. I understand it's a palliative chemotherapy. My medical team won't be back until October so I'm just adjusting to their replacements. Take care shelby
Hello Shelby. Sorry about the scan results and all the new challenges you are facing. You probably thought of this but can you get more info on the drug from the pharmacist? I don't know anything about it. I am a couple of steps behind you in the meds list. Ibrance/Faslodex. It is all the more difficult dealing with a change in doctors. I had that happen also right at a bad time in my cancer journey.
Wishing you well with your new adjustments. Stay strong and safe,
Shelby and Sarcie, your arms are never to short to box with MBC. We are in this together as we learn from one another. We mourn as one, pick yourself back up and keep truckin. MBC you will not win this battle and the battle is never over until God says its done. Until such time, we fight and we fight with everything we got. Keep smiling and keep your inner peace but never give up!
Sorry for change in protocol, but like so many of us "metavivors" feel so lucky that there are many options when one treatment stops working. Stay hopeful!
Sending many prayers for your well being throughout this new treatment! God bless you!!
Have not heard of your new chemo but will google it.
Just wanted to say my tumor markers have been going straight up since Jan 2018. You need to stay on for a few months to see if they bring markers. Two I had to stop because of bad side effects.
I am now on abraxane. My hair fell out completely on second treatment. I do have nausea an mouth sores and a few other side effects.
But the best part is my marker went Dow drastically in one month.🤗 one went from 4480.8 to 2200.2 the other went from 3809.2 to 1608.2. I am praying they keep going down.
I get upset when I get petscan showing progression all the time and like too many places to list all.this is the first hope I have had in two years.
But I am glad they have so many things to try. Like you I am finished with oral pills. I think if the markers get to remission they try to find a pill that keeps them down not sure.
So just hang in there we have to keep thinking the next treatment will work, it is what keeps us going.
Good luck on your new meds and I pray they work for you.
Thanks for responding I hope that your markers continue to go down and your next pet scan has even more positive results. I have never understood why some have high markers and some have low. I get my markers checked every month and mine started off at 25 and now they are at 32. My first bc was in 2009 my markers stayed at 20 . In 2016 my markers were 25. Keep us informed how you make out
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