My skin mets have progressed and I’m now off 18 months of hormone therapies and back onto chemo, this time on oral Vinorelbine, which I am due to start in a few days’ time. Would appreciate any experiences with this drug. And treatment or skin mets.
I was diagnosed with metastatic breast cancer in Mar 2018 on discovering two tiny nodules on skin of chest wall - treated with capecitabine (Xeloda) first for six months. Bad side effects initially, though I fared better when they dropped the dosage after 2 cycles but it wasn’t effective. I then fared better with Tamoxifen for up to a year but progression in Nov 2019 to skin, rib/bone and pleura. Moved onto Exemestane, Denusomab injections and Pleurx. Latest CT shows stable disease except for what I pointed out to Onc a fortnight ago with visibly new skin nodules and lesions on chest was which seem to have progressed markedly in last few weeks (and causing a lot of discomfort in a few places - rash/inflammation). So now, we’re going for Vinorelbine. Nervous about side effects follow Cape experience!
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matisse29
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I’ve just looked up this drug and the side effects are similar to everolimus which I’ve been taking for almost six months...like you I read the side effects and was scared to death...however apart from anaemia I’ve actually felt reasonably ok so I just wanted to tell you this
You may be absolutely fine...any drug change is scary...it’s the unknown
Thank you, Barb! That’s reassuring to hear. Glad you’ve been pretty much ok on everolimus. (though anaemia not so good). Hope positive effects continue for you! Nicki
I had skin mets on my chest a year ago. Did you have a biopsy? Mine were triple negative even though my liver is 99% ER positive. I was treated in a clinical trial w Lynparza and Tecentriq, an immunotherapy. They cleared up and have not come back. The liver tumors are still there. You might ask about a biopsy and immunotherapy if your current treatment doesn’t work.
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