Any body is on PACLITAXEL. EVERY WEEK?

[Karcia80]

Hi. My name is Karolina. I start Paclitaxel after Imbrance stop working after 7 month. Any body take that chemo??

[Mets1]

I am on Paclitaxel three weeks on and one week off. This is after Ibrance, Xeloda, and Doxil or Red Devil all failed within a short amount of time. I have not had any scans that show that it is working however the tumor in my breast is not as big, I am moving better, and I am taking much less pain medication. So it appears I am moving in the right direction. I have been told it attacks the cancer from a different direction than the other meds so I am hopeful that it slows my progression. Good luck and I hope that is beneficial for you. If you have any specific questions feel free to reach out.

[Hidden]

Hi Karolina, I don't have experience with that treatment, but did want to wish you success with it! Plus I love the photo...beautiful!

[BangorBelle56]

I was on Taxol for 19 weeks and all my tumours shrunk. I found around 18 weeks that the side effects kicked in and I felltbawful. I had a three month break with just Fulvestrant and it was lovely. Unfortunatelyntumours started to grow again so I am on Avastin, Xeloda and Denosumab. Not doing well on this combination as my lungs feel inflamed , I have hand and foot syndrome and a runny tummy. Can’t go back to taxoluntil November, but much preferred it to what I am on now as I also feel permanently tired. Good luck.

[MacroMom in reply to BangorBelle56]

So sorry to hear about all the side effects with your new combo. I've heard that Avastin can affect lungs, hope your oncologist can help with that. The hand/foot thing is such a bother. I know from past posts you've heard all the tricks and are probably doing them. Hoping your body adjusts and some of the fatigue eases off. Have you tried taking CoQ10 to help with that?

I just had my 6th infusion of Abraxane last week. The fatigue really hits a few days after the IV but it only lasts a few days; my nails are getting funky, things taste weird and of course my hair disappeared a few weeks into it. But I'm hoping to stay on this for a while too as it seems to be knocking back the cancer.

And then there is the virus on top of everything else! Stay safe and good to hear from you!

Patty

[BangorBelle56 in reply to MacroMom]

Poly balm is great for chemo nails but it is quite expensive

[MacroMom in reply to BangorBelle56]

THANK YOU! Just looked it up and ordered some. The clinical trial study results are impressive. I'll let you know how it works. Do you have any advice for preventing peripheral neuropathy? I don't have tingling or numbness but sometimes in the middle of the night it feels like someone is putting a needle in the bed of my big toe! (and my cat doesn't sleep with us!)

[BangorBelle56 in reply to MacroMom]

So sorry I have neuropathy too but have not

T found anything to help it x

[Hidden in reply to BangorBelle56]

Did you see my response below? I hope it can help you too!

Sophie

[Hidden in reply to MacroMom]

Peripheral neuropathy is a pain! The first thing I would suggest is getting your vitamin B12 checked, as low levels can really exacerbate the problem. If your levels are low, you can get it from food sources such as nutritional yeast, marmite, or meat and dairy products (eggs, milk, meat, fish etc). I had my vitamin B12 checked and it was low. My integrative doctor recommended CoEnzyme B Complex by Innate. It's a very good brand and has really helped. I hardly ever have problems with peripheral neuropathy now.

Sophie

[Karcia80 in reply to Hidden]

Thank you Sophie... I Will check Vit B12🙏

[Hidden in reply to Karcia80]

You're welcome, Karolina. It's a simple blood test. So if your vitamin B12 is low then you can decide whether you will take a supplement or get the nutrients from a food source instead. I was eating nutritional yeast, but I was getting bored of eating it so I take a supplement now.

Sophie

[BangorBelle56 in reply to Hidden]

Thanks for the tip

[Hidden in reply to BangorBelle56]

You're welcome! If you are anything like me you will have every available test. I have had my cholesterol, BNP, aldosterone, electrolytes and just about everything else checked. I also take every vaccine going! I don't want to miss anything.

Sophie

[Rustysrah]

Hi Karcia, I had taxol, 16 weeks all told. Was extremely effective first line treatment for me - I had many tumours, too many to count, and they all disappeared or reduced until I had just two small spots in my spine. I only stopped because I was getting toxicity (nerve damage). I too found it quite easy compared to my first chemo for primary bc. I believe you can go back to it, so I’m holding that in reserve, as I know it works!

Best wishes, hope it goes as well for you

X

Rusty

[Karcia80 in reply to Rustysrah]

Hi. Thank you for your replay. I Will start on Tue my second. Im Just tired. Really worry about my liver. Have a tumor 4cm!!!Did you take tablets for nerve damage? I know this is not to much important.... But did you lose your hair?

Are you taking anything now??

All the best😘😘

[Rustysrah in reply to Karcia80]

Didn’t take any tablets, they didn’t suggest it. If I have it again I might ask about cooling hands and feet. No hair loss, it’s as thick as ever.

Now I’m on ibrance and fulvestrant, along with denosumab for bones.

Oncologist told me taxol is good for liver mets - is why he chose it for my first treatment. Hope it is good for you xx

[Karcia80]

Hi. Didnt get good news on Tue. They give me Just lower dose of Taxol😪Im feel ok, Just tired. Really worry about me liver, she must fight❤️

We probobly going to Poland. They offer me more treatment then in Nothern Irleand. 🙏🙏🙏🙏🙏

[BangorBelle56]

Why poland? Do you come from there? I live in n Ireland too, in coDown.

[Karcia80 in reply to BangorBelle56]

We are from Poland... More treatment for me there🙏🙏

[Hidden]

Dzień dobry Karolina!

Welcome to this site. I see that this is your first post on here. There is a Polish community where I live, and I have some lovely Polish friends.

I am not on the same treatment as you, but I wanted you to know that you are welcome on here. Please feel free to share your diagnosis and what you are going through. I hope that you will draw strength from the other ladies on here. We are here for one another. It's a very supportive site.

Take care,

Sophie

[Karcia80 in reply to Hidden]

Do you have any contacts for Polish Group?

Thank you 😁

[Hidden in reply to Karcia80]

I'll PM you, Karolina.

Sophie

[MacroMom in reply to Hidden]

Dzień dobry Sophie and Karolina! That's all the Polish I know, except for the food words like pierogi and kapusta. My dad grew up in the Polish neighborhood of Cleveland, Ohio and though we didn't speak the language at home I loved the food. Pierogi is still one of the best comfort foods I know!

Karolina, I have a lot of liver metastases too and am taking Abraxane, a taxane chemo similar to Taxol. It seems to be helping because my cancer marker dropped a lot after 4 treatments. I did lose my hair after the second treatment but otherwise the side effects have not been too bad. If you can get better treatment in Poland though, and it's a familiar place, that sounds like a good plan. Best of luck to you!

Patty

[Hidden in reply to MacroMom]

Hi Patty,

That's great that you are of Polish descent and were able to maintain some of your culture through your dad. I love pierogis too. I took part in an international food festival party with a group of friends two years running, and we all shared our different ethnic cuisines. So there was Polish, American, Italian, Portuguese, Mexican, Indian, an English afternoon tea theme, and many other cuisines we catered for. My husband is American. I was surprised at how popular the American food we prepared was (tater tot casserole, macaroni salad, American baked beans etc). I gravitated over to the Polish stall, where I tucked into some delicious authentic Polish food. It's making me hungry just thinking about all that lovely food we enjoyed.

Sophie