Hospital

[Kiera49]

New restrictions in uk, can only go out for specific reasons, taking hospital appt card and hospital band with me in case I have to prove I'm going to hospital

[nstonerocks]

Same here in NY and NJ. I think this will spread around the country. Our president is talking about returning to work “a lot sooner”. I hate to think he would jeopardize us all for th sake of the economy The numbers don’t support that and either do the resources and treatments

[Mimigram in reply to nstonerocks]

Agree

[Hidden in reply to nstonerocks]

Yes he would. He said he wants people back and running within a few weeks bc the economy would suffer where medical experts said that is highly improbable to do at this time. Money over life for him. I think a majority of people in NY and NJ would just refuse to go back to work.

[Hidden in reply to Hidden]

I don’t blame them for refusing. This nightmare virus can resurrect itself. No one knows 🙁☹️

[Hidden]

We should be ok. I’m walking to my hospital tomorrow. Two miles each way. We were told we could attend hospital especially for Chemo etc. I don’t think the streets etc are policed yet. Like you I will take my appointment letter with me. Best wishes

[Kiera49 in reply to Hidden]

Thank you, I live about 6 miles away from my hospital luckily the bus had hardly anyone on it so could social distance ok, I asked nurse if I should be shielding as have lung and bone mets and on targeted therapy, as I have only had general coronavirus txt and not told to shield myself, but hospital said I should def be shielding. Appt went ok no probs. All the best to you, take care

[Hidden in reply to Kiera49]

So pleased you had your appointment as planned. I also have bone, lymph nodes and lung mets. With Denosumab, Letrozole and Ibrance as treatment. Thing is I also have a cough since being on the treatment so going on public transport is a little embarrassing even under normal circumstances. The buses here in Liverpool City Centre are almost empty to but I would rather walk. I need the excersise. Keep in touch. It’s so good to have this forum.

[Thatflowerlady in reply to Hidden]

Do you Know what the cause of the cough is ?

I also have had a cough for 6 plus months . No one seems to know why . It is frustrating and embarrassing ( especially right now with the virus )

[Hidden in reply to Thatflowerlady]

Without reading the leaflets again I think it’s the Letrozole that can cause the cough. Drives me mad sometimes. I have mets in my lungs and I’m an asthma sufferer also, that’s controlled though. Hope this helps you. Cheryl

[Thatflowerlady in reply to Hidden]

I am on Fulvestrant after Letrozole quit working for me about 18 months ago . So I am not sure . I have been blaming the ibrance BUT always have to remind myself that it could be non cancer related . We can have other medical conditions .

[Hidden in reply to Thatflowerlady]

I feel the same way. I have it in my lungs but I cough alot. Now, if I am in lobby or something to get my mail and cough, I can feel like people are immediately scared of me. I find myself trying to stifle my cough. Sometimes a cough is just a cough but people are nervous.

[Thatflowerlady in reply to Hidden]

Yes everyone is scared.

[Hidden in reply to Hidden]

I agree. My husband also has sinus trouble that makes him,cough. He had a phone consultation with the doctor today who has recommended a home made solution and a nasal spray. We both get the evil looks but what can we do. Certainly not hold it in. We always cover our mouths. Oh dear!!

[Mindysooty in reply to Kiera49]

Must be differing health authorites as i had a txt saying i must stay indoors and if I want fresh air open a window. No visitors. if live with someone sleep separate, own bathroom if possible, and lots of other things. i have mets to lung and chest wall, bones, liver and lymph nodes in neck and chest. X

[Kiera49 in reply to Mindysooty]

I have mets to lungs and bones and only targeted therapy, haven't had a letter saying I need to shield only a general text, although oxygen nurse said I need to shield not go out apart from garden or open window, I live in norfolk, so confused do I shield or not.

[Mindysooty in reply to Kiera49]

Personally id say if in doubt shield unless youre advised otherwise. x

[Teddielottie in reply to Kiera49]

If you are currently taking Ibrance (Palbociclib).you should be shielding as it affects your immune system . Take care x

[Kiera49 in reply to Teddielottie]

Thanks Yes I am on ibrance, have been shielding

[Thatflowerlady in reply to Mindysooty]

That is great that they have communicated with you . I have not heard anything . And I hate to bother the clinic at this time . I have another 11 days before I should start next round of ibrance so I have time to wait for direction .

I have been isolating myself as much as possible .

[Mindysooty in reply to Kiera49]

Ps im on palbo, letrozole and denosumab x neutraphils usually at around 1.1 -1.3. X