Immunotherapy-Chemotherapy *Update #2* - SHARE Metastatic ...

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Immunotherapy-Chemotherapy *Update #2*

Topaz_77 profile image
24 Replies

Hello All!

***Warning: In light of negative responses I’ve seen in an online cancer support group I’m in, if you’re an atheist/agnostic/any other person who gets severely offended by posts about God, I would suggest you exit my post now because I am about to go there. You’ve been warned!!!***

Oh and this will be long. LOL!

So anyway, last week I finished my second month of Tecentriq-Abraxane and OMG!!! I’m just going to go ahead and call Immunotherapy a miracle treatment sent by God Himself!!! Our God works in mysterious ways. He does. He hears and answers prayers, even the ones we don’t speak.

It was some years ago when one of the doctors at my job started talking about Immunotherapy being the wave of the future. I thought, “Huh,” and then put it in the back of my mind, not a clue what he was talking about. Then, when this cancer came back a second time, this lady I met in an offline cancer support group started telling me about this lady who was in an immunotherapy clinical trial whose cancer was completely wiped out. Other people in the clinical trial died because it was a difficult treatment to administer as each person’s administration level would differ as it’s based on your own immune system. I’m no fool though. I don’t need to be knocked over the head too many before I realize that God is trying to tell me something. I mean, why am I randomly hearing about Immunotherapy two times.

I asked my oncologist about Immunotherapy and she said some along the lines of “you’re not there yet.” Huh? Fast forward a bit as I already mentioned previously that Ibrance started to fail and I finally got a chance to try Immunotherapy because miraculously I became eligible for it. It’s only for triple negative for now, which it turns out I became eligible for because I’m only 10% ER+ which is seen as triple negative. And then Immunotherapy got a rush approval in April 2019. That was all nothing but God. Period.

So here we are today, having finished my second month. What am I seeing? So far:

1. No side effects. I’ll give it one or two more months before confidently saying my hair hasn’t fallen out. It’s still here but still.

2. The tumor in my neck, which was the size of one of those large marbles or rubber balls you can hold in your hand has practically flattened out.

3. There was this sore on said tumor from number 2 on the surface of my skin, which I’m guessing was the beginning sign cancer mets to the skin, is gone now. The skin above the tumor is smooth.

4. Sores on my left boob, original location of first cancer tumor and where cancer returned, clearing up. They actually fell off. These were definitely skin mets. My oncologist confirmed that when the cancer first returned.

5. For this one, I had to finally admit that what I was feeling in my left boob was a mass and not hardening of my breast implant following radiation (I was in denial about that). I used to be able to feel the hardened edge of something there and now I just feel the sponginess of the breast implant.

I haven’t had any further diagnostic tests as I just did them in October (I believe I was told they’re done every 5 months) but I know my oncologist wanted to wait a few months anyway before reviewing the treatment just to see what this new treatment regimen was going to do. Physical changes that you can feel are what you notice first anyway. Diagnostic tests take you deeper. I know some people get scanxiety but, right now, I’m looking forward to more diagnostic tests to see what’s going on with my metastases, especially my liver since they noticed six new spots along with a cyst two scans ago though no confirmed liver mets.

I really feel like the cure for many stages of cancer will come from our bodies. After all, many cancers are just our own cells that have gone rogue and cancer uses the fact that it comes from our body to survive because it knows how to hide by turning off our immune system. The point of Immunotherapy, in my treatment anyway, is to make the immune system recognize cancer where ever it is so it can destroy it. I may be aging myself but I feel like a game of Centipede or Space Invaders is going on in my body right now. LMBO!

Perhaps my coworker, the doctor, was right about Immunotherapy being the wave of the future. I’m just happy to leave it all in God’s very capable hands as I know that it will all work out for my good.

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Topaz_77
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24 Replies

Hi Topaz,

Thanks for sharing how well you are doing with immunoherapy. Let's hope this treatment continues to zap what's left of your disease. It is encouraging to hear of how well others are doing as it gives me hope too.

Take care,

Sophie

Topaz_77 profile image
Topaz_77 in reply to

Amen! I know it’s just for triple negative breast cancer (and other cancers) right now but I pray they make it available to all types of breast cancer soon. 😊

in reply toTopaz_77

I hope so too! Immunotherapy seems to be helping a lot of cancer patients.

kduck profile image
kduck

Please keep us informed. Im happy to here how good things are going with you.

Topaz_77 profile image
Topaz_77 in reply tokduck

Yay! Thank you! 🙂

Sensai7 profile image
Sensai7

I too am undergoing immunotherapy for metastatic endometrial cancer. Mine is ERPR + , HERS -ive. Its been 2 months and most of my problems have disappeared. Keeping fingers crossed.

I wish you all the best and I hope the scan goes well.

Topaz_77 profile image
Topaz_77 in reply toSensai7

Thank you! That’s great that it’s working so well for you, too, and may you continue to improve. 😊🤞🏾🤞🏾

Jackdennis5 profile image
Jackdennis5

I am so pleased for you . God is good . Xx

Topaz_77 profile image
Topaz_77 in reply toJackdennis5

Yes He is! Amen! 🙏🏾

Rhwright12 profile image
Rhwright12

Awesome to hear it’s working! As I said in my Survivor Speech for Relay in June “Incurable is a man made word. Made by a man that doesn’t know my God!” ❤️

Topaz_77 profile image
Topaz_77 in reply toRhwright12

Amen to that! Nothing is too hard for God! 🙏🏾❤️🙏🏾

RLN-overcomer profile image
RLN-overcomer

Good morning Sister/warrior: Thank you for your personal journey promising information that will help so many more of us in the future. I am so happy for you. I was diagnosed in 2007 with Triple negative DCIS breast cancer. 10 of my 12 lymph nodes were impacted with cancer. Before treatment I was told by the oncology treatment doctor at least three times that I would die, and I would not live to see 2009, even with the treatments he was going to put me through.. This oncology doctor was the worst doctor I have ever encountered in my life. His staff, and yesssssssss his poor wife were afraid of him. I thought if the cancer doesn't kill me this doctor will. This is the doctor my health coverage afforded me that was linked to my hospital where I had my surgeries, and my months of radiation. God did bless me with another Dr. This angel Christian Chief Surgeon Dr. would pray over me at every surgery, and also every time I was in post operation waking up. Back then in 2007/2008 there were no medications to help women diagnosed with Triple Negative breast cancer. So In 2008 I prepared for my physical death, hoping when the time came God would say, come in my good, and faithful servant. Every test or scan I took every 3 months kept coming back NED. These tests, and or scans continued for years with the same NED results. I could see the doctors, and medical staff who knew my diagnosis , even though they wouldn't comment on my diagnosis/prognosis , they saw me as a sought of miracle. I was always laughing with them , but I know they were in awe of my results asking me about how I live my life, and what I eat, and drink. I am a Christian believer, and I know this was DOCTOR/GOD telling me not to believe or trust in the medical reports. I kept hearing this phrase "I am your GOD/CREATOR and the power of birth, and death is in my hands. If God says come home right now heaven awaits, I am so grateful/thankful for the years of milestones, and time I have had with my loved ones , that yessssssss I have been given by God., when the medical oncologist said I wouldn't live to see 2009. What year is it now .I don't fear death. I hope/pray to get my wings, and enter the pearly gates of heaven when that time comes. I also thank God for Immuno-therapy, medical marijuana and the other natural modalities that are allowing sister/warriors to live longer lives with their loved ones Amen, amen, and yessssssssssss amen ! ! ! XoXoXoXo Merry Christmas, and Have a Happy New Year.

Topaz_77 profile image
Topaz_77 in reply toRLN-overcomer

Amen Sister/Warrior! Thank you so much for sharing your wonderful testimony about how our Father God has worked and continues to work miracles in your life. It truly encouraged me as it is confirmation that God is indeed still working miracles. I, too, do not fear death. Whether I live or die works to my benefit because I either get more time with my loved ones on this side or I get to go on to spend eternity with Father God surrounded by love. Clearly we’re still here because God is not yet done with us. Thank you again for sharing and may God continue to bless you. 🙏🏾😊❤️

RLN-overcomer profile image
RLN-overcomer in reply toTopaz_77

AMENNNNNNNNNN MERRY CHRISTMAS

Topaz_77 profile image
Topaz_77 in reply toRLN-overcomer

Yes!!! Merry Christmas!!!

Godbeforme profile image
Godbeforme

Praise God! I believe we will ALL be healed soon because of immunotherapy and soon I hope! God bless you and heal us all in Jesus name, amen!

Topaz_77 profile image
Topaz_77 in reply toGodbeforme

Amen! Claiming healing in Jesus’ name! 🙏🏾

Godbeforme profile image
Godbeforme in reply toTopaz_77

<3

Chico64 profile image
Chico64

Where do You find the place to have it done? It sounds interesting. I might want to try.

Topaz_77 profile image
Topaz_77 in reply toChico64

My treatment is done at Kaiser Permanente Medical Center. My oncologist set it up.

Praise God it is working! Thank you for sharing! ❤️🙏❤️

Topaz_77 profile image
Topaz_77 in reply tohopenowandtomorrow

Amen!

God loves it when we trust in Him. Thank you for your post.

Topaz_77 profile image
Topaz_77 in reply toLilykristymichael

Amen 🙏🏾

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