Ibrance not working

[Nat1990]

My mum just got her ct scan results her oncologist rang her earlier and said he wants to see her this week instead of next there is small illusions on liver .. rest of her scan is fine and the small met in her spine is also fine. But obviously ibrance and letrozole isn’t working so he wants to talk about going down the road of proper chemo I am beyond devastated anything like this happened to anyone else? Xx

[Francesca10]

There are women on this site

[Francesca10 in reply to Francesca10]

Sorry phone jumps

Yes there are others here who have experience with that. From what I know usually radiotherapy is done for liver lesions -directly into them. It is not unusual-wanted to let you know that. Hopefully you will get more replies that will help more. Sending 🙏🏻🙏🏻🙏🏻🙏🏻And hugs

Frances

[Barbteeth]

Hi Nat

I’m on Ibrance letrazole combo which is working on bone mets...however I have a liver lesion which has grown so obviously that’s not responding to the treatment

However my oncologist is reluctant to change medication so I’m having SABR radiotherapy on the liver lesion and hopefully that will kill that

I would question the proposed treatment or ask for another opinion as there are other hormone treatments out there...obviously I’m not a doctor but from what I’ve learned on this site it appears that most ladies have several combinations before going onto chemotherapy

But maybe that’s the treatment your mum will benefit from but if it was me...I would ask for a detailed explanation

Barb xx

[Nat1990 in reply to Barbteeth]

Yea this is what I mean I don’t understand why he would jump straight to that I’m so confused and upset by this why oh why? Her small met in her spine is fine and no other spread anywhere else

[Barbteeth in reply to Nat1990]

I understand how you’re upset

Don’t dwell on it...ring up and ask to speak to him or have an appointment...you need answers...my oncologist gave me her mobile number to contact her if worried..I haven’t so far rang her but would do so if I was concerned

Barb xx

[Nat1990 in reply to Barbteeth]

Are you from the US? We’re from the UK I hate the way they work things here you have to wait for results and stuff for like 2 weeks I suppose that’s why we have free healthcare. Oncologist’s aren’t as flexible here it’s always the waiting around game. I mean he didn’t rule out anything he just mentioned proper chemo but I am gonna ask questions I’ve been screen shotting stuff off this website to ask and or to him xx

[Barbteeth in reply to Nat1990]

I’m in the UK...Nottingham....we have private healthcare but I don’t really think it makes a difference in the treatment..I’m just seen in a different hospital that’s all...she’s an NHS consultant but sees private patients at a different place

Do get in touch with him and don’t be afraid to ask questions..I think we all get a bit overwhelmed by consultants but they’re doing a job the same as anyone else and should answer queries as part of it

Hope this helps

All the best

Barb xx