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Faslodex

Barb5 profile image
10 Replies

Anyone on Faslodex having burning aching knees and thighs plus redness around knees weakness in legs or whatever side effects I’d be interested in hearing. Wishing everyone success with your treatment.

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Barb5
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10 Replies
nstonerocks profile image
nstonerocks

On faslodex several months. No similar side effects. Except for shots feel much better on it than in letrozole. Sorry you are having discomfort. Are you on anything else?

Barb5 profile image
Barb5 in reply tonstonerocks

Xgeva and verzenio. Are you only on letrozole thankyou for you input.

nstonerocks profile image
nstonerocks in reply toBarb5

I was on letrozole for little less than a year. Some progression in size of some lesions. Added Ibrance. Last September again showed some progression in size, not number, of some lesions. Stopped letrozole and started faslodex. I do not have the joint pain I had with letrozole. It is very inconvenient for me to go once a month into the city, but I feel better. In Feb. my scans showed some regression, and I credit that to the faslodex.

diamags profile image
diamags

I've been on it for 5 years. My knees do hurt. The best thing I've found for this is walking. That makes a huge difference.

Hi Barb I have mild knee discomfort ( but not nearly as bad as when I was on Letrozole) it can be very hard to know what medications cause what discomforts or if there is other medical issues.

Hi Barb I was wondering if your joint pain has improved ? And if so what seems to have worked for you

Luann

Barb5 profile image
Barb5 in reply to

Hi Luann I have been using cbd oil and it helps tremendously with any kind of pain. I only buy from the dispensary I have my medical marijuana card the cbd in stores are not the same and I feel you don’t know what you are getting. Hope you feel better soon.

Barb

Thank you

Do you use the oral drops or the ointment?

Barb5 profile image
Barb5 in reply to

I actually started using a spray that you spray under your tongue and it’s flavored like grape or peppermint so much better tasting than the drops.

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