Faslodex complications

[Likes]

Hi,

Happy 4th to all of you! Does anyone suffer from diverticulitis? I am taking faslodex . Does faslodex cause colon problems? Thanks for anyone’s input. Have a great day! Susie

[Melpub]

I haven't had colon problems from Faslodex. As far as I know. From the whole treatment, the Faslodex, the Ibrance (75 mg) and the Xgeva (every three months) I am sometimes tired and breathless. I go to the gym and dance classes but I think the getting-slightly-out-of-breath and of course the bad hair (with a capital B) are the main side effects

[Shafight in reply to Melpub]

Hi Mel pub. I take the same mds as you. So far, few side effects. I get shortness of breath but still exercise. My hair is breaking my heart.

[mariootsi in reply to Shafight]

Mine too!

[Shafight in reply to mariootsi]

Does the hair thinning keep getting worse, I’ve been on Faslodex gain e last June. It started thinning about 3 mo ago. Maybe it’s Ibrance

[Suzie-Wong24 in reply to Shafight]

Hi, I was told by my doctor's office that Ibrance causes thinning of hair and in some cases it can cause hair loss.

[mariootsi in reply to Shafight]

I think it's both the Faslodex and the Ibrance! Mine is still thinning and frizzy! Yuck!

[Shafight in reply to mariootsi]

Exactly. Mine too. Frizzy

[bracelets1 in reply to Shafight]

I was wondering, does your hair continuously thin while your are on Ibrance or does it ever "even out"? After so many months does the thinning slow down?

[Melpub in reply to Shafight]

My hair is flyaway dry. Have tried many types of grease, fancy and not. I guess a professional blow dry would be the only way but takes tooooo muccchhhh timmmeeee. Have to emphasize my cleavage and my wit and hope whomever doesn't care too much about hair.

[Shafight in reply to Melpub]

Professional blow dry didn’t do much fo me.

[FaunShea]

Hi , I take faslodex with Piqray. I take micronozed L-Glutamine to help my stomach at nite on an empty stomach . One little scoop of 5kmg. of L-Glutamine in 8 oz of water . My naturopath told me about it . It helps the mylen sheathing (lining)of the stomach. I think it's the Piqray, not the Faslodex that upsets my stomach however.

Hope that helps.

Faun .

[Likes in reply to FaunShea]

Thanks I’ll try that .. now I’m dealing with Covid too omg! 🙏

[FaunShea in reply to Likes]

I'm sorry about the Covid . I got sick on Pacletaxel when I was getting the IVs. I got high dose vitamin C IVs 50k and took Zinc which helped my immune system. You can get 25 k vitamin C drips as well. I am used to the drips so get higher dosages .

You have to go to an alternative doctor or Naturopath to get the vitamin C drips .

[Likes in reply to FaunShea]

Thanks so much!

[FaunShea in reply to Likes]

Sure 💗💗

[dnamscg]

On it since February and no stomach problems. Hope it resolves.

[Boseypuss]

Hi there…….had my monthly injections of Faslodex yesterday (in year 3 of treatment and doing well !) ………stomach in bits today but it can be hit and miss and not always like that ! Hope you will be OK ? I am on 75mg daily of Ibrance too 👍

[Shafight in reply to Boseypuss]

Boseypuss. That’s wonderful that you’ve had 3 years. Did you have a problem with Ibrance ?

[marianne88]

Yes my last scan showed I have diverticulitis which I never had and now I have trace ascities which I don’t even know what that is. I wonder if it’s the meds and not progression

[mariootsi]

Don't know if faslodex causes this because I had diverticulitis long before cancer dx.

[Likes in reply to mariootsi]

Ok thanks

[Likes in reply to mariootsi]

ok thanks

[Onie54]

Hi Susie

I’m Susie as well!! 😊

I have had diverticulitis since 2006, I have to say that since 2018 being on Ibrance and letrozole I have had many more bouts of it. My oncologist feels it’s more the Ibrance that causes me to have more occurrences as a result of my lowered immune system. On her advice I have skipped a cycle of Ibrance on a few occasions and it has helped. I don’t know about faslodex but I may be switching to it in the near term so we shall see….

Susie

[Likes in reply to Onie54]

thank you for that information!! 😉

[Likes]

Thanks for sharing information . I’m finally over Covid with a negative test .. it took one month!!so I can get faslodex tomorrow Have a great day! Susie