Hello, this is my first time commenting. First of all, I want to thank all of you ladies because you all have been so enlightening in so many ways. My Mother who is 67 was diagnosed with MBC in June 2018 er+ her- extensive bone Mets pretty much everywhere and a couple small spots on lungs. She had radiation to the sacrum and skull and started letrozole in July 2018. Radiation was tough and recovery a bit long because it really impacted her gi and uncontrollable loose stools for wks. We passed that and it seems like she’s healed from that. She’s responded very well to letrozole alone her onco has decided to not mess with success and keep her on letrozole alone. She has shoulder, neck, and arm pain at night pretty much. Very manageable in comparison to the original Mets pain she presented with. Anyhow, I have been incorporating some complimentary supplements and techniques to help. I have talked with her onco and she said in her case as long as it doesn’t increase estrogen she’s fine with it. The biggest things she is doing are: megadose vitamin c, magnesium, and this stuff called “Boston c”. I will include the link. That holistic md who led me to these products also recommended the “lugol’s solution iodine” (I found it on amazon). She recommended a drop in the morning and evening under the tongue and to rub it in my mom breast dimple where the original mass is. My mom was already responding to letrozole and stabilized but I don’t want to put all of our eggs in one basket so I feel like doing the alternative stuff helps. While many of these holistic folks recommend abandoning conventional treatment. I am NOT there yet and my mom is comfortable doing in addition to. It’s so overwhelming how much is out there. Research is good but I really do found I have to pray for the right things to come in front of me. Also here in the Philadelphia area there is an AWESOME non for profit called “United for her”. They offer 2k worth of free holistic treatments for breast cancer patients. You just have to enroll and attend one of their wellness days. Just a warning I feel like it was a bit depressing as an MBC patient going there bc it is mostly newly diagnosed breast cancer patients and I feel Like they were startled by MBC patients only because it’s their worst fear. And MBC patients get to renew their 2k annually for life as opposed to other breast cancer patients have it once for a year.
So here are the two sites, one for the products my mom takes and second is this non for profit.
My best to all of You!!! ✨✨
May be doing IV chemo for the first time. Need tips - really freaked out!
Mastectomy after 7 years of MBC
BEFORE MD NO TO MASTECTOMY NOW RECOMMENDING
Hoping the third time is the charm 
Ibrance stopped working, lots of pain in back 
