Pain on my pelvis and lower back is getting worse

[PLASEM]

Tonight I can not sleep my pain on my lower back and pelvis is worse I am on Ibrance and Faslodex for thre months with this combination and one year with Ibrance and Letrozole, my last bone scan on last October and act scans were ok, my oncologist told me that maybe is arthritis what are your recommendations thanks

[Barbteeth]

I really can sympathise..I’m the same but my pain is during the day so it doesn’t keep me awake..the hot sweats do though!!

Do you have a good mattress?.. I invested in a water bed a long time ago as have had back pain for years..it’s amazing..the only thing I miss when on holiday

I’ve also succumbed to taking the heavy duty painkillers..rode my horse this morning..not for long but there’s no way I could do it without the medication

You really shouldn’t have to suffer like this..it’s bad enough having this disease without the misery of pain..do get some good medication so you can feel happy and get a good nights sleep

I’m on Ibrance and letrazole and I’m sure they’re responsible for some of the pain

All the best

Barb xx

[PLASEM in reply to Barbteeth]

Thanks my mattress is good I recently bought it God bless you

[youngfarm in reply to PLASEM]

Receiving same treatment for MBC and MRI revealed cancer cell attacks on lumbar vertebrae which seems to have caused same pain you are describing. Have you had vertebrae examined recently or has this area been eliminated for the cause?

[PLASEM in reply to youngfarm]

Thanks

[PLASEM in reply to PLASEM]

I just had done an MRI waiting for results

[Snowcone16 in reply to Barbteeth]

Hey there, when is your scan scheduled? I just recall mine was for 6 months. At 3 months, my rib was achy. It wasn’t severe but suspicious. I had my scan moved to 4 months. The meds didn’t work...onc said they might have worked 2 months then stopped. I don’t want to worry you — it could actually help ease if the scan comes back neutral. 🤗

[PJBinMI]

I have heard two things that might be relevant to you. Healing bone mets can hurt. The pain from bone mets tends to be constant, so wouldn't just show up at bedtime, though I guess we might notice it more then. Also Letrozole can cause bone pain. When I went off it after almost five years, I was surprised by how much better my bones felt! If your onc is not a bc specialist onc, you might benefit from getting a second opinion from one who sees only patients with bc. I recommend that to anybody with mets. And some oncs communicate with patients better than others.

[PLASEM in reply to PJBinMI]

My pain is all the time but at night is worse

Tomorrow I will have an MRI please pray for me thanks

[Sandig1948 in reply to PJBinMI]

I had bone pain for the 12 years I was on Aramidex but thought it was caused by my life style. Came off it and within 3 months free of discomfort. I do believe i remained cancer free because of it. Letrozole now and discomfort but worth putting up with. I am very sorry for those it has such an impact on your lives and wish I had an answer.

Gigixxx

[Bailey3266]

Try alternating heat pack and/or ice pack or bath with Epsom salts. The letraziole contributes to weird pains for me—intermittent in upper right quadrant of abdome-tho my nets are in pliers, lungs & Lymph. Yoga for cancer (gentle warm water pool group exercise combined with speakers & get-together for survivors @ no cost YWCA Encore program is “free”! Go figure! I’m anti-Med and anti-therapy; but since on Ibrance convo x13 mos I’ve tried it all therapy, yoga, Encore, walking my doggie (best outcome); if you don’t want a dog fulltime; a cat is alternative. Somethings help; others don’t touch it; especially an occasional meltdown. I even tried but hated acupuncture/massage and mani-pedis are also gd medice=pampering (self-proclaimed quite bliss)!

[PLASEM in reply to Bailey3266]

Thank you for your good advice

[Purple60]

Pain is worse at night for any condition- not just cancer or bone mets. Our tissues swell at the end of the day and can compress nerves that may cause pain. When I lay down at night the pain increases very much so. My doctors have explained that by laying down and increased pressure on areas of bone mets they may compress nerves even more and results in pain. This explanation makes a lot of sense to me and so I take pain meds or acetaminophen or anti-inflammatory drug like ibuprofen before I get in bed so I can get ahead of it. Good luck!

[Snowcone16 in reply to Purple60]

Yes...feels like I age 15 years after 8 pm!

[PLASEM]

Thanks the bone cancer pain has that characteristic of being worse at nights