Hypercalcimia

[lweaver]

Sorry for my spelling. I believe Ibrance is not working, markers have been up for a few months, now alot if stomach upset. I just had zometa 2 weeks ago. I have to call my doctor asap to see if my calcium was checked yesterday and what to do. I'm very upset about this. Anyone else in tbis situation before with bone mets?

Thanks,

LeAnn

[BeckyHobson]

Hi Leanne,

I am having doubts about my Ibrance and Exemestane and Zometa treatments still doing the job. I finally called my oncologist and asked for a CT scan sooner than later and he was super accommodating. My scan is tomorrow. I’m always on the fence with this disease. Part of me says “what I don’t know can’t hurt me” and the other says “if I don’t find out something is not working then the tumors might spread”

So far my fears have been for not as the drugs are keeping the tumors in Check.

[lweaver in reply to BeckyHobson]

Becky,

I hope your scans get the results you need. I had PET and bone scan in the last few weeks. Soft tissue still no cancer, but bone scan showed increasing intensity which concerns me. I have gone to 100 mgs of Ibrance. I think my problem last week was some colitis acting up. I am feeling better now. I did not have vomiting like last year with hypercalciumia. My left hip pain bugs me and it's hard to walk when it hurts, but then it stops after about an hour. Im looking at a new protocol that could help. I hope to get started soon.

Take care and dont give up!

LeAnn

[BeckyHobson in reply to lweaver]

Isn’t it “funny” how we automatically jump to every different symptom as a negative side effect of our cancer. I have to remember to tell myself that I am getting older and body parts do actually breakdown on healthy people too lol

I had the scan today and today I feel really positive that the results will be fine on Thursday.

I did a little research on the LAT Flap reconstruction that I had done in the early 2000’s and turns out that I could just have a lot of scare tissue and an encapsulated implant that could be causing ALL of the symptoms that I think is my tumor growing again. Fingers crossed and prayers a blazing 🤪

Wishing you great success with the new protocol 💕 I’ll be following you so keep us posted

[lweaver in reply to BeckyHobson]

Becky,

I agree on the symptom/ jump to conclusions! I have a consult on Monday and start new protocol next week most likely.

Keep us posted!

LeAnn

[Hidden in reply to BeckyHobson]

Becky

Hope your scan goes well. I have a patient chart on my phone from hospital. So when the pet scan report comes in I can read it before I see my Doctor. I tried to refrain but I had to read it. So I knew there was activity before I saw her. Pet scan also show other tings, like it showed I had heart burn. A bladder infection arthritis in my knees bad. So you are right there are things that have nothing to do with our cancer. It's just normal or our age making us worry. The good thing even though it was scary to read before I saw the doctor, I knew exactly what I wanted to ask her about. I can also see my blood work and check my markers. So when my blood work comes in this month I will know off the new meds are working. Then I will have scan done again in July. Yes that is all we do is think about scans, markers, meds. I try to keep busy and this site helps me to see it is not only me doing this.

[BeckyHobson in reply to Hidden]

My doc is good about NOT letting me see that stuff before our one on one visit but I ALWAYS see him within 2 days of the scans. I don’t want to know ahead of time. It would freak me out worse I think.

Great News on my end yesterday though!! No new tumors and the chest wall tumor is so minute the radiologist doesn’t even see it👍🏻

Massive amounts of scar tissue though so going to see a plastic surgeon that my oncologist recommends to see what we should do about the scar tissue and the implant that is well over 10 years old.

Stay Strong my Friend!! We All Fight Together!!

[Hidden in reply to BeckyHobson]

I am so happy to hear everything was good with you. I go to University Cancer center in Newark NJ. They automatically sign you up for My Chart on your phone or computer so I can keep track of appointments and results. I was really surprised to know that I can see all my scans also. I see her once a month and had scan two weeks before I saw her.

Again I am happy for you..

Barbarja

[BeckyHobson in reply to Hidden]

Ummm I would go crazy waiting weeks to see my doc after scans!! Mine won’t release the scan info or even blood work til he has personally spoken with me . Stay strong!!