Hello. I was diagnosed in 2012 with the Pleomorphic subtype of Invasive Lobular Breast Cancer. The Pleomorphic part means that my cancer is more aggressive with the cells dividing and spreading more quickly.
After watching Share's Webinar on Invasive Lobular BC, it was stated that those who have the Pleomorphic type should receive chemotherapy. I didn't. I had a lumpectomy followed by 33 rounds of radiation, then put on Arimidex. No bloodwork, no scans done in that time period even though I had one sentinel node that was positive.
About 1 1/2 yrs later, June, 2014, bone mets appeared. The anti- hormone drugs Arimidex, Tamoxifen, Faslodex didn't help much even though I'm 95% ER+, Her2-. My new Oncologist put me on oral chemo pill Xeloda which brought my tumor markers down immediately. Now they're slowly rising. I believe I'm headed for Ibrance + Letrozole next even though I don't respond well to the anti-hormone drugs.
Was wondering if anyone out there has a Pleomorphic finding in their Pathology report and have Lobular BC. If so, what's type of treatment plan are you on? Thanks so much for any input you can give me.