Satge 4 Breast Cancer: I was diagnosed... - SHARE Metastatic ...

SHARE Metastatic Breast Cancer

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Satge 4 Breast Cancer

Partia profile image
13 Replies

I was diagnosed w/stage 4 bc feb 2016. It came back after 15 yrs when I had been diagnosed stage2b

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Partia profile image
Partia
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13 Replies
Tm7777 profile image
Tm7777

I was diagnosed with stage 4 breast cancer That mestized to my bones,sternum,hips and spine it was 15 years for myself too. I had stage 1 breast cancer hope all is going well.

Partia profile image
Partia in reply toTm7777

Thank you for asking. Mine is in all the bones you mentioned above. Mainly in the sternum but also in hips, pelvis, sacrum, some spine. Also in my lungs but like 2 and 4 ml. Very small and they haven't grown thank God. I don't have any groups or support groups so this should be nice. I hope you are doing well too. How long has it been since you were diagnosed?

Tm7777 profile image
Tm7777 in reply toPartia

5 months I'm doing ok ibrance I'm having problems with making me sick lowering white blood count very low.

Partia profile image
Partia in reply toTm7777

I had to lower my dosage once of Ibrance. I feel much better then I use to. Not looking forward to a long cold winter thought. It seems to exaberate some pain. But really my pain is not so bad.

Tm7777 profile image
Tm7777 in reply toPartia

I myself am not looking forward to the long cold winter. I'm feeling the pain but am up dressed and moving everyday!!!

Partia profile image
Partia in reply toTm7777

It was wet and messy out today but I got out anyway. Happy Thanksgiving

daf10 profile image
daf10

Welcome to the group I believe you will find the support that you are looking for here

May I also suggest Share, the non-profit with which I'm affiliated? We have several phone-in groups for women with metastatic disease led by both social workers and volunteers living with stage 4. We can also assign you an individual telephone peer whose

situation will resemble yours, if that would be helpful.

Check out our website at sharecancersupport.org if you are interested.

Best of luck.

Partia profile image
Partia in reply todaf10

Thank you kindly.

LynnAM profile image
LynnAM

I was diagnosed with stage 4, on pelvis, October 2015, 3 yrs after my first diagnosis of stage 2b...on Ibrance and Letrozole, zometa infusion every 6 weeks. Ibrance makes my WBC low (I get tired easily on my 3rd cycle, my hair is thinning big time)....

Partia profile image
Partia in reply toLynnAM

My hair has been coming back for last 2 months and I am on letrazole and Ibrance. So far it seems kind of thick (hair). 15 yrs ago after chemo it came back alot thinner.

Partia profile image
Partia in reply toLynnAM

My doctor has me on zometa infusions every 4 weeks. Im starting to have a bit of jawbone pain I need to tell him about though. It is a biosphnonate (sp?) and it can affect your jawbone

Kats3 profile image
Kats3 in reply toPartia

Partia, I think problems with the biophosphonate arise in the jaw if you have invasive dental work done such as an extraction or root canal. My doctor said to stay away from that of possible.

Partia profile image
Partia

Thanks. I haven't had any work done but I needed one of those cleanings that deep scrape bone. Won't be doing that!! Sometimes I feel a little pain't on one side

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