Mrsdoozer in LUPUS UKa year ago
I am not sure if there has been a post on here recently regarding Salagen. I did one last year when I was having trouble locating...
Mrsdoozer in IBS Networka year ago
I am not sure if there has been a post on here recently regarding Salagen. I did one last year when I was having trouble locati...
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jupus in LUPUS UK2 years ago
I was just wondering if any other Lupus with Sjogren's patients were struggling to get supplies of Salagen again. My pharmacy was saying the...
Mrsdoozer in LUPUS UK2 years ago
Hi Everyone ,
I have been Pilocarpine or Salagen as it has been called for over 7 years ,it was prescribed by my then consultant to help with...
Update On Salagen Pilocarpine Saga
Hi Everyone, Just thought I would update the situation regarding being unable to source the much needed Salagen. First a big thank you to Ba...
Pilocarpine (salagen): update
Barnclown in LUPUS UK3 years ago
Hello all 👋👋👋. 8 months ago, I was being screened at the metabolic bone unit for IV bisphosphonate treatment. The rheumatologist was in...
Anyone here with experience of pilocarpine (salagen)?
Barnclown in The Australian Sjögren's Syndrome Association4 years ago
Am 61, living in the UK, with infant onset systemic lupus (probably due mainly to inutero DES exposure). That earl...
America and Canada have been using evoxac(cevimeline)for dry mouth with good results does anyone know of its use in australia?
adleybra in The Australian Sjögren's Syndrome Association6 years ago
Pilocarpine .One G.P. put me on this another told me to Stop using. What results are others finding using this. Evoxac anyone using this?
Chris21 in LUPUS UK4 years ago
Has anyone tried this medication? I've been having problems with dry/sore throat that's probably in a flare and my normal spray is not havin...
Ozchick in Sticky Blood-Hughes Syndrome Support3 years ago
Kerstin kindly pointed me toward Xerodent tablets. Unfortunately, these are not available in Australia. I have tried both of the mouthwashe...
Dry mouth and dry eyes?
TishG in NRAS7 years agoPOPULAR
Does anyone suffer from dry mouth and dry eyes? I need to use gel all the time as my saliva seems to have dried up. Anyone having the...
How to cope with dry mouth?
Joanne_Joyce in Parkinson's Movement7 years ago
I wonder if other people have the same problem and if so how do you cope with it? . I can only eat soft and juicy food. For example, I can o...
Hip and Knee pain,also low back pain!
charlie007 in LUPUS UK5 years ago
I just got X-Ray results,nothing significant showed up,but I have on going pain at night,and also when I walk up a lot of stairs,driving,or ...
Hello Everyone, did anybody know from your own experience how to treat thyroiditis without thyroid replacement treatment?
Joyleen in Thyroid UK6 years ago
Hello Everyone I was diagnosed with Sjogren's syndrome but also with thyroiditis I have all symptoms of thyroid inflamantory change, huge pr...
Can Sjogren's be intermittent ?????
Jillymo in Sticky Blood-Hughes Syndrome Support5 years ago
I am awaiting a Labial Gland Biopsy for Sjogren's due to my bloods being negative even though I have all the symptoms.......or should i say ...
Rheumatologist told me all in my head
Blogg in The Australian Sjögren's Syndrome Association5 years ago
I have been on methotrexate for over a year due to RA and it also helps alleviate my SS symptoms. As I live in a developing country this has...
my teeth are falling apart can any1 help
scottty in LUPUS UK6 years ago
I am new here but feel I could do with support 🤗
NannieB8 in LUPUS UK2 years ago
I have been taking Hydroxychloroquine for some time .
January I began Salogen.
This month I began taking Azathioprine and by next week will b...
Teeth and gums
satellite in Scleroderma & Raynaud's UK (SRUK)2 years agoPOPULAR
First time in sending in a question have had Raynaud's and limited scleroderma for 5years but now having terrible pain and lumps in my jaw i...
Dani_7 in Scleroderma & Raynaud's UK (SRUK)7 months ago
Just looking for some advice. I have Sjögrens Syndrome and have suffered with dry mouth for quite a while but I feel it’s got much wor...
Hidden in The Australian Sjögren's Syndrome Association6 years ago
Can anybody give me ideas how to treat a dry mouth at night, it is very bad, and my gums are getting sore now, I have only had this for a sh...
julie1234 in LUpus Patients Understanding and Support3 years ago
Hi everyone i have lupus and sjogrens has anyone else had painful glands in their neck and round their ears so it is painful to open your mo...
Nanny23 in Sticky Blood-Hughes Syndrome Support3 years agoPOPULAR
What is Sjögren's Syndrome? Is it related to Hughes syndrome? Just found out my sister in law has it.
I have tested + for anticardiolipin antibodies - is this related to Hughes Syndrome?
LucyLocket in Sticky Blood-Hughes Syndrome Support6 years ago
I am apparently positive for these antibodies. I had to attend the recurrent miscarriage clinic about 7 years ago before finally managing t...
Hey, this is eye ball is weird
cctexan in LUpus Patients Understanding and Support3 years ago
I mentioned to optometrist that I had shooting stabbing pain in left eye sometimes, he asked is it fast?
So I poked him how fast, said it las...
newly diagnosed with SS. i live in scotland uk
audk in The Australian Sjögren's Syndrome Association6 years ago
hi there everyone .,,i am new to joining this site and was recommended from someone else. i attended my hospital in arpil this year and told...
Loopydroopy in LUPUS UK2 years ago
I'm quite new here, to all this. I've been on hydroxychloroquine, colchicine, and salagen for about 8 months and was doing great and then I ...
advice on bloods please
Mary52 in Thyroid UK5 years agoPOPULAR
the following were done 6 weeks ago. and gp wanted to reduce my levo from 100 to 75 daily. I refused to reduce the dose. I dont have hyper s...
Painful mouth ulcers
Sores_1 in LUpus Patients Understanding and Support2 years ago
Hi, I have Lupus and have developed extremely sore ulcers on my tongue, pallet and back of throat.I even get sores in my upper nasal pass...
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