What works for me the last 30 years

[Bat3353]

What works for me for the last 30years is a 3mg Neupro patch and at bedtime 3mg Ropinirole I have no RLS symptoms 8 years ago I tried to ween off and it was hells after seeing two doctors one asked why did I want to put my self through that and he was right the positive thing about it was I went from 4mg to 2mg and in 8 years it only went up 1mg NO SYMPTOMS AT ALL. The patches are expensive but it’s come down in price and with the manufacturer discount card I’ve been paying $30 for 90days

[Madlegs1]

You are one of the incredibly lucky people to not get augmentation.

I wish you all the very best for the future.

👍☘️💚

[Joolsg]

You are most definitely in a minority. To have zero RLS on such an extremely high dose of dopamine agonists is unusual.At that high dose after 30 years most patients would be unable to sit still in the cinema or car in the day and Impulse Control Disorder would hit.

I would never recommend anyone else try either of these meds as they are now relegated to 'end of life scenarios' by the new AASM guidance.

Do watch out for signs of augmentation and ICD.

[SueJohnson]

I sure would not recommend this to anyone.

You are taking the equivalent of 7.5 mg of ropinirole when the maximum is 4 mg so in a sense you have already augmented by needing to increase to that much.Just don't increase it any more.

[SueJohnson]

3 years ago you said you were on it for more than 15 years.

[Bat3353]

I’ve been on this dose for 8 yrs I usually replace the patch before bedtime but on a few occasions I feel the RLS acting up I’ll replace the patch for a few days before midday and it works

[Joolsg in reply to Bat3353]

Have you experienced any ICD (gambling or Impulse spending or overeating or hypersexuality)? On that high a dose the risk increases enormously.