Feel I'm being listened to for the first time in 30 years

I would like to say a massive big thank you to all the people on this site for the help advice and support I have received since joining a couple weeks ago.

I went to doc armed with loads of knowledge from this site and RLS uk and for the first time I was listened to. I went in feeling confident in myself and the information I had learnt. He not only listened he asked questions and was impressed I could answer without hesitation. The upshot of the appointment was him congratulating me on wanting to come off the Ropinirole and admiring me for reading up so much on my illness. He said he will give me anything I want to try that is recommended by fellow sufferers and then asked me for the websites I had gained my info from and said he would be spending his weekend reading up on RLS so he can be a better doctor to not just me but others and thanked me for giving him so much information.

I feel uplifted by his attitude and it's all down to you guys. Thank you so much from the bottom of my heart. Although I'm not off tablets yet I feel confident I'm going to do it and say goodbye to the hallucinations and the sleep walking and become " normal" once again

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17 Replies

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  • That is so fantastic. For you, for us and for the doctor.

    Hugely empowering and a road map of how we can get through to the medical profession - education , courtesy and firmness and armed with information.

    Congratulations on achieving such a huge step forward in your progression to full health. You may never come off drugs- but you are now part of a team - you , your doctor and sites such as this, which hopefully will achieve a better quality of life for you.

    Power to you.

  • I feel so empowered by his response and even if I never come off the tablets I feel more in control than iv ever felt all my life.

  • You have a great doctor. Let's hope he passes on RLS information to his colleagues. I have a feeling you will eventually say goodbye to the Ropinirole. :)

  • Thank you so much for sharing, Vonny.

    It is so good to hear that you have benefited from joining the forum, gained lots of information from the members and also congratulations for going to your GP appointment armed with data. Knowledge is power. Your doctor too for listening and being interested to learn more about RLS and wishing to know from where you got the details. That is excellent teamwork.

    Please keep in touch and let us know how you go on. :)

  • I'd like to congratulate you. Well done Vonny, you've given many people hope and encouragement with your post, you may even have just started a revolution!

    Good luck with your medication changes.

  • Thank you. I just hope others experience such a positive attitude from their GP in the future. I would like to add that I had visited this same GP in the past and did not get this response from him. I know it was my knowledge on the subject that made him change his attitude.

    Best of luck to others and my advice is arm yourself with facts as that was definitely my best tool

  • Great news. Being able to help yourself and having your view point listened to and respected is a wonderful if not lacking element in peoples recovery.

    Great to see a Dr taking his job and patients so seriously. Good for you standing up for your self and congratulations.

    This place is a fantastic support in all areas of our condition thank God/Allah/Krishna/IPU for it.

  • Hmm, maybe he watched the channel 5 programme, and realised just how people suffer. Doctors treat this affliction as trivial and time wasting, they don't realise just how debilitating it can be. Lets hope more doctors are getting educated regarding how this affects patients.

    I'm so pleased at the outcome of your gp visit.

  • No he didn't watch the programme as I asked him if he had seen it

  • Wow how blessed are you my dr said he didn't have time yes that's what he said ,how caring was that .im so happy for you ,you have a good man and dr there I can hardly believe it ..😇

  • I always had the same attitude prior to this visit too.

  • So pleased your doctor took notice mine didnt even ask for information I felt he just left it up to me what to do as farI as coming off ropinerole. I have cut down a week now and feeling ok .

  • I feel really blessed about my doctors attitude. As I said in an earlier post I had visited this doctor before and didn't get the same response but this time I was armed with facts and statistics and could answer any of his questions which I'm sure was the reason for his change of attitude. He could see how serious I was and how much time and knowledge I had gleaned between visits to see him.

    But to be fair it was the fabulous advice given to me from people on this forum that made me do as much research as possible and I will always be grateful to each and every one and I hope as my journey continues that I can be of assistance to others

  • My gp didn't ask for info either. I went in with the mindset that I wasn't leaving until I said my piece and lo and behold he actually listened.

    I wish you luck with reducing your dose as iv been on them before and stopped and tried other medication without success and had to go back on them but this time my augmentation has been so much worse.

    Have a good read at all the advice given on this forum while your on your journey to come off your medication as it will help immensely especially when things are getting tough. You can't beat reading advice from like minded people who UNDERSTAND exactly what your going through.

  • I think I might go back and be more assertive im having a blood test, so need to see him anyway good opportunity to try again

  • Definitely. At the end of the day you have nothing to lose and everything to gain. Read as much as you can before hand and let your GP see how serious you are. Best of luck to you and please let me know how you get on

  • I am very impressed your physician was willing to listen to you.Also you yourself must have presented it very well.Congratulations,not everyone has a doctor willing to learn.

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