Lacosamide: Another weapon in the ars... - Restless Legs Syn...
Lacosamide: Another weapon in the arsenal?
I’m on lacosamide. 👍👍 First med to give good relief since I got off pramipexole. I’ve written a few posts about my experience. Worked well but had more breakthrough than I wanted. I was symptomatic seven days a week pre-lacosamide and it knocked that way down. Currently tapering and down to 100 mg a day. My tapering is due in part to a web of other medical and neurological challenges. I have had no side effects or sensitivity worth worrying about. My doctor has been able to test my blood levels to get me in therapeutic range. That’s a plus to be able to get a lab result unlike so many other meds I have blindly tried with no guidance. But it’s an epilepsy med — another off-label RLS use which requires more research and attention.
Anyone interested may search lacosamide or Vimpat (brand name in U.S.) in this forum. Best of luck if you try it. 😊
Glad to hear that it's working for you! How frequent or severe were your breakthroughs btw? Also, did you experience any loss of efficacy over time?
Sorry for the delay. Yes, I would titrate up and after a short time, had to increase again. Lacosamide or VIMPAT 300 a day put me in therapeutic range according to blood tests and stopped my RLS. I switched to methadone for a variety of reasons and I am currently tapering back off lacosamide to see if I can get relief on methadone alone. So far so good down to lacosamide 50 twice a day and minimal breakthrough RLS on solo methadone. Also of note, I’ve had the Nidra TOMAC bands for a month or so which has relieved my RLS breakthrough every time I have used them. It is remarkable how much relief I’ve gotten from the Nidra device.
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