Seeing my GP Monday: Seeing my GP... - Restless Legs Syn...

Restless Legs Syndrome

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Seeing my GP Monday

Retiredandrestless profile image
β€’14 Replies

Seeing my GP Monday. I told my friend that !method one and gabby were recommened. He told me absolutely not as it has heroin in it and I would be stuck on it forever. I'm on hydrocodone . Three of them now thru out the night at 10/325mg. I definitely do not want to take this since it makes me feel like crap the next morning. I used to take just 1/2 to 1 pill and that would do the trick. Not anymore and I'm so frustrated! I also have klonopin for anxiety. I'm leaning toward gabapentin. He said valium was good,since his grandmother takes it for restless,legs. Any suggestions ? Thanks for helping guys.😊

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Retiredandrestless
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14 Replies
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SueJohnson profile image
SueJohnson

What is !method one that he thinks has heroin in it?

Valium won't help RLS. It does reduce anxiety and may help insomnia bit it has a long half life of 48 hours.

Klonopin also has a long half life of 40 hours and can make you tired the next day. I don't think you should take both clonazepam and valium. If you need something for anxiety I recommend buspar.

Go with gabapentin.

Retiredandrestless profile image
Retiredandrestlessβ€’ in reply toSueJohnson

That's what I was leaning on. I'm just wondering if the gabby will help me get off the hydro? Thanks Sue

SueJohnson profile image
SueJohnsonβ€’ in reply toRetiredandrestless

It won't help you get off the hydrocodone but assuming it works you won't need to take the hydrocodone although as you wean off it you may need more gabapentin to take its place.

SueJohnson profile image
SueJohnsonβ€’ in reply toSueJohnson

Methadone obviously does not have heroin in it. And it is an excellent choice if the gabapentin doesn't work.

Retiredandrestless profile image
Retiredandrestlessβ€’ in reply toSueJohnson

I'm going to try the gabby first.if it doesn't work I'll discuss with my gp about methadone. I know with methadone I wouldn't have to worry weaning off the hydrocodone as they both do the same thing. I take Kratom and know that helps with weaning off opiods. I'm alittle nervous about all of this right now

SueJohnson profile image
SueJohnson

So what is !method one that he thinks has heroin in it?

Madlegs1 profile image
Madlegs1β€’ in reply toSueJohnson

Methodone- I suspect.

AI autocorrect gone PC.

(Even while I was writing this it did not want to spell it for me)

Methodone.

Methodone

Methodone

Methodone!!!πŸ‘

There - I think I have it tamed and cowering in the corner!πŸ˜πŸ˜ŽπŸ€ΊπŸ‘½πŸ‘»πŸ¦ΎπŸ¦ΏπŸ¦ΎπŸ¦ΏπŸ’ͺπŸ’ͺπŸ’ͺ

SueJohnson profile image
SueJohnsonβ€’ in reply toMadlegs1

My laugh for the day! πŸ˜€πŸ˜€πŸ˜€ What would I do without you to liven up my day.

Joolsg profile image
Joolsg

I think you need a new GP. Anyone with severe RLS will be on meds for life. Methadone has a good safety profile. It works well for RLS.I'm on a similar med, Buprenorphine, and accept I'll be on it for life.

Anyone with a chronic, progressive, incurable neurological disease will be on meds for life. Would your GP give a similar warning to a PD or MS patient? Of course he wouldn't.

I have MS and RLS and I'm on MS meds for life and doctors accept that.

If RLS were treated as the chronic, serious, severe disease that it is, no GP would say such a foolish remark.

Retiredandrestless profile image
Retiredandrestlessβ€’ in reply toJoolsg

I love my GP and he understands otherwise,he would not have been scripting me hydrocodone. The hydro has just completely stopped working,been on it 14 years. I will bring up methadone to him. I've read that it is very popular for rls. Am wondering, did you have to have side effects when you first started? Did it start working right away? If I took this I wouldn't have to worry about weaning off the hydro. Thanks for your help

Joolsg profile image
Joolsgβ€’ in reply toRetiredandrestless

As Homer would say, Doh@!!I misread the post. The friend made the comment. Apologies. Mea Culpa.

I take Buprenorphine and switched overnight from 25mg Oxycontin.

Buprenorphine was utterly miraculous and has been ever since. Zero RLS day or night.

And I did have horrendous side effects the very next day. Severe nausea that floored me for a week. But medical cannabis with 20% THC stopped it immediately. I only used cannabis for a week & when I stopped, the nausea had stopped. At week 4 I developed opioid induced panic attacks but was ready for them as they happened when I first started Oxycontin. Dr Buchfuhrer had recommended a small dose of pregabalin to counter the panic. I still had pregabalin left over and took 50mg at night and it stopped the panic.

I now take a very small dose of 12.5mg pregabalin.

I also suffered head sweats and a 10mg cetirizine and the pregabalin keep those to a minimum.

But as I have zero RLS night or day, I don't mind the odd sweating episode.

Madlegs1 profile image
Madlegs1

Ah lads-- don't be blaming the poor doctor in this case.

It was the idiotic friend who was giving his best advice, depending on family experience.

Totally wrong,of course,!!

We can only wait to see if it is the doctor who is recommending the method treatment.πŸ˜†

Joolsg profile image
Joolsgβ€’ in reply toMadlegs1

I am an eejit Madlegs! Speed reading the post.

Madlegs1 profile image
Madlegs1β€’ in reply toJoolsg

Love ya!πŸ’šβ˜˜οΈ

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