CBD Oil

[Mulberry100]

I’m wondering if anybody knows if it is ok to use CBD oral oil whilst taking 225mg Pregabelin and 50mg Tramadol (once daily at night). I also take 100mg Levothyroxine, 5mg Rosuvastatin and 2.5mg Ramipril for blood pressure. I have recently had some calming relief from taking a bath with CBD oil Bath Bombs, they certainly help to calm me when things get tough! The effects are quite short term but have helped. Having, I feel, explored every Avenue except CBD oil I thought It may be worth a try and have purchased 10ml of 250mg, which recommends half a dropper twice daily, however, I am concerned it may have an affect on the other medication I take.

I have also recently, via a friend, been given details of a Dr Chaudhuri, based at Kings College Hospital, London , who is an expert on Parkinson’s and RLS, I am going to try and get an appointment with him in the desperate hope there is still something I haven’t tried.

Thoughts on CBD oil would be very much appreciated.

[SueJohnson]

Unfortunately both Levothyroxine and Rosuvastatin which is a statin both exacerbate RLS symptoms in some people, but you obviously need them. NEXLIZET is a cholesterol lowering drug that is not a statin, but don't know if it exacerbates RLS symptoms. By the way my husband lowered his cholesterol from 221 to 131 by going on a vegan diet but of course that is not for everyone. As to your pregabalin, according to the Mayo Clinic Updated Algorithm on RLS: "Most RLS patients require 1200 to 1800 mg of gabapentin daily." which translates to 200 to 300 mg so if you are not getting complete relief from your symptoms you may need more.

[Mulberry100 in reply to SueJohnson]

Thank you for your reply, I think I will add another 25mg Pregabalin and see how that goes. Will also ask gp to change my statins and thyroid medication. I have also booked a video appointment with Prof Chaudhuri’s team. Thank again.

[Hidden]

I took medically prescribed CBD oil (without THC) while taking pregabalin 300mg. While the oil had no psychoactive properties, I still felt more spaced out taking that combination, than on pregabalin alone. To the point that I didn't feel comfortable driving a vehicle.

I didn't persist with it for that reason.

Then again, I find i'm particularly sensitive to a number of medications that I've tried.

[Mulberry100 in reply to Hidden]

Thanks very much for your reply, I don’t think I will go down CBD oil route, but try increasing Pregabalin.

[rlsagain]

Hi Mulberry, Please can you tell me if you’re seeing Dr Chaudhuri privately at Kings or on the NHS? How long did you have to wait for an appointment and were you referred by your GP or did you contact him directly? I’ve tried the team at Guys in the past, but they put me on pramipexole which I’ve now finally weaned off, after suffering awful augmentation , but now my RLS is worse than ever and I really need to see someone who knows what up to date treatments are available! Thanks.

[Mulberry100 in reply to rlsagain]

I am so sorry Rlsagain I thought I had replied to you. I was given Professor Chaudhuri contact by a friend of a friend who is a Parkinson’s expert and has worked with him. He has a particular interest in RLS and has written books etc. I will be seeing him privately. There was a 6-8 week wait for an appointment. I was given the option of seeing a Dr Nicoli Dimitov with a 3 week wait. I have delayed for the time being as I was asked to forward blood test results and Neurologist report. As I have never been referred to Neurology it was suggested that I ask my GP for a referral to one. Apparently, they like to have all relevant information prior to the appointment so he is well informed before, to save time. The cost for an hour, either face to face or video is £900. To see Dr Chaudhuri and £450 for Dr Dimitrov. It’s a lot of money and I am concerned that I may have tried everything and there isn’t anything left to try BUT I think it’s worth a go!

Again I apologise for not replying sooner.

[rlsagain in reply to Mulberry100]

Thank you, Mulberry100, I do hope whoever you end up seeing comes up with a solution you haven’t tried. I agree, it’s certainly an eye watering amount , but it could be money worth spent! If you can, please let me know how you get on, and in the meantime I’ll get my ducks in row re: blood tests and neurologist report, so I’m armed ready if I decide to follow your lead. As I have posted before, the neurologist I saw at Guy’s put me on extended release pramipexole, which has been a nightmare to get off, so if your gp does refer you, I hope it’s to someone who is up to date and knowledgeable about RLS.

Good luck and all the best.