CBD oil frustration: Hi, having read... - Restless Legs Syn...

Restless Legs Syndrome

21,428 members15,092 posts

CBD oil frustration

EveW profile image
EveW
18 Replies

Hi, having read all about CBD oil from this site and also online, I decided to order some LoveHemp from CBDoilsuk, and in the meanwhile got some CBD plus from Holland and Barrett, to get me going before the other stuff arrived. I just cant believe it, but it seems to be making my RLS WORSE!!! I had 2 drops am and pm for 48 hours, and my legs steadily ached more and more (the daytime version of my night time RLS) and were worse at night. And that was using the H & Barrett weaker one. I am going to have to send the other stuff back as it is a higher concentration and I cant see that it will do anything other than be even worse! I am going to wait for a week, then try again, just in case. From a recent post I do remember someone saying that they had the same experience as me, but with everyone else it seems to help. Very frustrating, and once again an illustration of how different "our RLS" is. any comments or advice would be very welcome.

Written by
EveW profile image
EveW
To view profiles and participate in discussions please or .
Read more about...
18 Replies
taylord1984 profile image
taylord1984

I found CBD on it's own don't help at all with RLS. You need the THC as well. I use cheap weed as I'm poor and top up the CBD levels with a CBD vape. In any case you would be better off with a vape as then your digestive system and liver don't go wasting any of the CBD and is insistently available.

You my find your CBD levels are already good as the human body produces it's own version of CBD. There is even brain receptors to receive just that.

en.wikipedia.org/wiki/Endoc...

BTW Even with weed it only masks the problem don't help me getting sleep but just make my day so much more bearable.

EveW profile image
EveW in reply to taylord1984

Thankyou for your reply taylord

rkatt profile image
rkatt in reply to taylord1984

Hi taylord, CBD vape? Interesting. How might I acquire this? I use weed for RLS but hate smoking and would love a different form of delivery. So far I can’t get cannabis tea to work. Best wishes. Btw I’m in the U.K.

taylord1984 profile image
taylord1984 in reply to rkatt

Hey :) CBD in the UK as you probably know is legal so getting a vape should be easy. I have bought locally from vape shops and I have tried a seller on ebay called ultrauk-group-uk. Once your CBD levels are good you will find the weed will have a grater body effect.

If you got the money then there is sellers that do a full profile vape minus the THC that is. So you end up with CBD, CBG and even the terpene where all the nice tastes comes from. Will have to use google for that as there is loads of sites that do it.

I think if you use high THC weed it ends up depleting your natural CBD levels and I think that is how you get them paranoid weed heads. There was a documentary not to long ago that tested the paranoid thing by giving just THC and again with CBD in with it. The THC buzz was not so nice and did put people a little on edge.

If do get back to work and I got the money then I would just buy a medical CO2 extracted resin off the deep web and make my own vape or buy a medical vape.

BTW I don't smoke my weed I got a dryherb vaporiser called "vapir no2" as combustion wastes so much of the weed and well it tastes very nice this way.

Bit more info than need I'm sure but I'm quite passionate about cannabis lol I'm hoping I've not broken any rules but I think I'm covered by not giving full sourcing info about the illegal parts of this topic.

rkatt profile image
rkatt in reply to taylord1984

Terrific! Thanks so much. That’s so helpful. Off to my vape shop now. I have a vaporiser but it doesn’t deliver any effect.

Btw Kratom works well with RLS. But when I have the worst attacks it doesn’t help. Only weed does and saves me from agony and being a total wreck next day.

All the best

Lukesnan profile image
Lukesnan

Having tried almost everything I have been almost free of RLS for the past 48 hours after taking B12 I have doubled the recommended dose but will reduce it after a few more days, worth a try for you, magnesium helps too

suzybe profile image
suzybe in reply to Lukesnan

After almost a year I intend to stop wasting my money on magnesium as it makes no difference to my RLS at all. Recently tried Gabapentin as my GP thought it might help my back pain but couldn't eat anything as I felt so ill and my RLS came on really badly and was a 24 hour a day problem.

Tapir profile image
Tapir

I am so sorry that CBD oil has not worked for you, I have had instant relief from daytime RLS after the first 2-drop dose placed under the tongue. I still require 0.088 mg Pramipexole to get me through the night, however, which is half my previous dose.

Are you taking other medication which may be interfering? Otherwise, it is one of the mysteries of RLS that some things work some of the time and for some people.

EveW profile image
EveW in reply to Tapir

I don't know enough about the CBD oils to know what may interfere with it, although that is a possibility. I am glad it works for you :)

Smiffyliz profile image
Smiffyliz in reply to Tapir

Are you in uk and which brand do you get

Tapir profile image
Tapir in reply to Smiffyliz

Yes, I am the UK and I buy it from Holland & Barrett. It is normally £19.99 for a 10ml dropper bottle but sometimes reduced by £5, I keep a lookout for that. I use 2-drops under the tongue twice a day and a bottle lasts me almost 1 month.

EveW profile image
EveW

Hi Tapir, I have looked at how CBD oil works ref interactions with other drugs, and I think I may have the reason why it made my legs worse - apparently CBD oil will potentiate the effect of some drugs that you are taking, increasing the effect, and one class of drugs that is affected are anti-depressants. I am on an SSRI, and know that when I increase the dose, my legs get worse. SO it may be that the CDB oil is increasing the effect of my lower SSRI dose, causing more problems with RLS. Thankyou very much for your suggestion :)

Lash65 profile image
Lash65

It was disappointing for me too. Gave me an instant headache.

EveW profile image
EveW in reply to Lash65

Hope springs eternal!!!!

Reader5 profile image
Reader5

The oddest to me is when I first had RLS the obvious calming things like wine or a tranquilizer (except for high quality Full dropper of yucky-tasting CBD oil) any relaxing substances like wine...and

all alcohol intensified my RLS. At a hospital on different occasions I was given... once Xanax and once Atavan....tranquilizing medicine to calm me before knocking me out. Later I learned I kicked and twisted so hard two people had to hold me down.

Soooo to respond to your just taking a few drops....Maybe u needed a full dropper of a premium CBD oil....like go for it!

Either your RLS will keep u up all night or it will keep your legs calm for ,2 or 3 hours. If calm, take another dropper.

Obviously, if u take a full dropper and RLS us worse, do not use CBD oil aagin. For me the 2nd day, I didn't need CBD oil as a often.

If u have no luck with CBD oil, u probably feel frustrated, BUT don't give up. Different people have different results. U WILL find something that works. Research into RLS is new, but with blogs like this, it finally is getting publicity and medical attention

lynnae629 profile image
lynnae629

I know this is an old post but I just started CBS oil a week ago and I have been experiencing this too and I sought out answers online and came across this site....it is the cbd with hemp...I have upped my dosage on it to see if it would help but haven't achieved any success with it yet...disappointed

EveW profile image
EveW in reply to lynnae629

Thankyou for contacting me anyway :). I decided in the end not to try it - from what I have read, and seen on a TV programme, about it, the dosages are very variable in terms of what a company claims it to be, and you need to take alot to get decent results, which would make it very expensive.

Lacey-WA profile image
Lacey-WA

I just tried CBC oil for the first time this afternoon, and it seems to have caused RLS, which I’ve never had before!

You may also like...

CBD oil stopped working!

recommended CBD oil for RLS. I was one of the first to suggest this solution. Then one night after...

Insomnia add CBD oil

insomnia add extra pure CBD oil. If you suffer from opioid insomnia add PURE CBD OIL always...

CBD oil with Buprenorphine

trialing CBD oil predonmenantly to help with sleep but also to see if it helps with my RLS....

A bit of progress and CBD oil

tell me if they have had relief after using CBD oil..? Any other comments too would be...

Anyone tried CBD Oil?

weeks the patches seem to have lost their efficacy - got no sleep at all last night. My thoughts...