Firstly, I feel I’m getting more from this community than contributing, for which I apologise, but I’ve just started my journey and hopefully I will be able to contribute more as my experience grows.
So basically I have PLMD, not RLS. The only symptom I get that I know about is being really fidgety in the evening, to the point where I have to sit almost naked as I can’t bear the feeling of my clothes touching my skin, and I’ve no idea if it’s actually related to the condition or not. The rest I apparently get while sleeping. Daytime sleepiness is the biggest issue I had, along with feeling on another planet, the reason I sought treatment in the first place. Now I’m on 2mg of requip daily and my daytime sleepiness is worse than ever, I can’t stay awake longer than 22:00, I just seem to pass out, then at 8am my partner is practically dragging me out of bed, then I’m spending the remainder of the day wishing bedtime would come sooner. The common theme with all the medication seems to be sleepiness. I appear to be stuck in a lose/lose scenario, leaving me wondering what the point in being treated even is. Many of yourselves have the benefit of the medication relieving your RLS symptoms, for which a bit of sleepiness may be worth it, but for me the meds don’t relieve anything I’m aware of, and I’m starting to wonder if there’s any point.
Anyone with specific experience of just PLMD without RLS out there that may be able to offer some advice?