Hi all. After about 3 years of the gradual onset of symptoms and searching to find out what’s going on with my legs, I have been diagnosed with RLS although I’m not sure I agree yet. My problem is that I can’t sit down, which is very frustrating and it’s for all 24hours of the day. If I do sit I get pain and tingling in my legs that keeps intensifying until I am forced to stand up and thereby relieve the problem. I can get away with about 10 mins before I start to get uncomfortable and can last, depending on the type of chair, for up to an hour before it gets unbearable. I have ruled out lots of possible causes. I have had an MRI on my lower back which came back fine. My bloods are within or just above the normal range set by the NHS. So iron, ferritin, vitamin D and B12 magnesium are all ok. The only one negative thing that showed up was that my red blood cell count is just below the lower limit of the normal range. As the doctor didn’t contact me and the nhs receptionist said everything was fine, I am guessing it’s not a problem but I have passed on the results to the neurologist that diagnosed my RLS for his opinion on the red blood cell count. So far I have refused any medications as I want to try and exhaust all areas before I go down that route.
So I have one main question. Does anyone else suffer like this? as I can’t find anyone on the net complaining of exactly the same thing. The best I can see is that others have an urge to move their legs in the evenings if they sit. I don’t have any urge ever to move them for the sake of it. I only move them because I am forced to due to the pain intensifying. I basically have to spend my days standing or lying down, in which case I just get very mild tingling.
I would really welcome anyone’s thoughts and experience. Many thanks.