I need some help: I have not had a... - Restless Legs Syn...

Restless Legs Syndrome

21,397 members15,062 posts

I need some help

desperate_41 profile image
8 Replies

I have not had a decent night's sleep for ages and the last 2 weeks have been unbearable the only thing I have done differently is taking a higher dose of iron twice daily and a high dose of magnesium 375mg with vitamin B complex, once a day I still take my Mirapexin .52 mg slow release in the morning, and at bedtime I take 2 Gabapentin 300mg +1 Tramadol 50mg and 1 Clonazepam Auden 500 mcg and I am not sleeping probably getting about 4 hours if I am lucky and feel like death in the mornings with a splitting headache which does eventually go away and do not feel "with it" for at least an hour. I am a permanent Zombie!!

This RLS is really terrible affecting people in so many different ways, I have had it for about 30 years now, tried all sorts of things nothing works long term,I am under a neurologist but do not see him till the end of July I feel very depressed now and know I can not take any anti depressants it is all getting too much,my husband is not at all well and that is making my worries a lot worse.

Anyway sorry to go a bit but any help would be very VERY much appreciated

desperate_41

Written by
desperate_41 profile image
desperate_41
To view profiles and participate in discussions please or .
Read more about...
8 Replies
glosman profile image
glosman

Hi not sure if it will help but I take 1-2 Mirapexin before I go to bed that way it helps avoid RLS during the night + seems to cover me during the day, maybe just juggle around the timings of your tablets??

Henshaw241241 profile image
Henshaw241241

Soory to hear from you about your rLs I take 2 pramipexole and 2 codeine i think it has been a bit better nothing werce when you can't get any sleep I have a teens machine and that is worth a try it has help me hope this is a help good luck let me know if any help Tony

Madlegs1 profile image
Madlegs1

It is possible that the magnesium is blocking the Gabapentin. Try taking it in the morning or at least 3 hrs apart from the Gaba. Or try cutting it out altogether for a few days.

It might be better to take the pramipexole in the afternoon/evening? How long does the slow release last for (actually rather than what it says on the tin)? In your shoes I would be tempted to take some additional tramadol to get some sleep. It sounds pretty miserable.

PeNy profile image
PeNy

Have you tried Ropinirole? I have found it excellent. PeNy

Pippins2 profile image
Pippins2 in reply to PeNy

Poster is already on a dopamine agonists Mirapexin which is pretty much the same as Ropinerole x

PeNy profile image
PeNy in reply to Pippins2

I did try Mirapexin before ropinirole settled me and it made me quite queasy so stuck with the rop. Just hope it sees me out!

PeNy profile image
PeNy

I really feel for you and wish you could find relief. It is the most debilitating condition and also maddening. You are certainly on a lot of different medica-tion - are they all for RLS? Perhaps there is one which throws all the others out? I'm so sorry and hope someone may be able to help you.

Molly.

You may also like...

some one with opioid-induced insomnia. I need help from you.

from oxycodone I am taking. I hardly get 2 hours sleep every night without any sleeping meds. The...

I need some help for a friend of mine addicted to pramipexole

Sometimes he forgets to take the pills and when this happens within an hour the twitches start in...

I need help coping with my RLS

years relief with just 50sr Tramal taken 3 hours before bedtime. This year I am struggling again...

I need some guidance on DAWS.

should have tapered (I realize that now). The depression is overwhelming, and I’m afraid it’s never...

Meeting at work in a circle, I need help with this please.

the whole time. I ended up saying that I wasn't feeling well and went to the bathroom a few times...