I have put off posting this because I've struggled so long and I never seem to get anywhere. Because of RLS I have insomnia . I go for days without sleep. I wonder the house at night in a semi conscience state. I often fall, eat at night, I've even taken extra medicine . I My RLS has worsened , it's in my upper body and arms. I know I am in augmentation . I take 3mg of ropinirole 3 x a day , 400 mg of gabapentin2 x a day , and 2mg of clonazepam 1 x a day. I have reduced the ropinirole to 3 mg 2x a day. half the gabapentin every other day, and 1/2 of1 clonazepam pill a day. I have done this very slowly without any assistance from my doctor although he is aware of what I'm doing. I am stuck with the dose of ropinirole, my doctor will not give me an opiate. Sys I'll be uncomfortable for awhile.Legs are getting worse.
I have had 3 sleep studies done. I want the RlS addressed and think the insomnia will then be over. Sleep specialist is doing the sleep first. He has prescribed mirtazapine which made my legs worse, then it was quetiapine which gave me brain zaps and made legs worse. When I told him I would not take this anti psychotic drug he suggested I find another doctor. So here am I with only my primary care dr.
This quest started in January and I am getting progressively worse . I have Afib and it is starting to play up. I attribute this to stress and lack of sleep.
I am to emotional about this and not thinking clearly. I am also scared wondering how much more I can handle .
Any suggestion will be appreciated. Pam