I've had RLS for about 12 years, and am also Hypothyroid. I search everything I can to find help. The nights are miserable and I find myself begging for mercy about the third day that has passed with no sleep. A few months ago, a neurologist added another diagnosis to my RLS. He said that the jerking was so severe, in my arms and upper body as well as my legs, that what I have is RLS with Myoclonus. All of the medications that have been prescribed for me have produced such horrible side effects that I no longer take any of the usual dopamine-type medications. But what does help a geat deal is that nightly, I take: a Cal/Mag suppliment (1000mg Calcium/400mg Magnesium/ 60mg zinc.), Pantothenic Acid 500mg, Vitamin D3 5000 IU , and especially have to remember to take 60mg of iron. Some nights I can sleep for three hours straight, get up and walk around for 10 minutes and then sleep another two hours; other nights I can't sleep at all. If I'm lying down or sitting, the jerking is most severe. Not until I get up an start walking around does it ease up. My body hols a lot of water so if I take my Lasix like I should, keeping my weigfht down, I don't jerk as much. It seems that I get my best sleep after the sun comes up in the morning. This disease makes no sense at all. It's crazy.
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