If you're having severe jerking of your legs, and/or arms, RLS may not be what you have. I read on the internet that RLS is just a mild sense or urge to move your legs. NOT! What I have is MASSIVE, SEVERE jerking, and I know you do too. A doctor told me that I may have what is called "Monoclonus". But whatever it is, it's really terrible. There are times that I am so desperate for sleep, all I can do is cry out to God, since He's the only one who can do anything about it.This is the most insidious disease I have ever heard of. It causes great sleep deprivation, so that at times you don't even know who you are.
I find that it helps to get up and walk around as much as possible. I also am Hypothyroid so my body doesn't like heat. Sometimes it's related to how warm my body gets, so I get up and go out to the living room, turn on the TV and chew on a glass of crushed ice. It seems to cool my body down, and next thing, I'm heading back for bed.
I can't usually sleep for more than two hours at a time. I get my best sleep after 5:00 am.
It helps a whole lot if I :
Take my Iron tablet every other day.
Take 400 MG Magnesium, 600 MG Calcium, 10 MEQ Potassium every night.
Let the fan blow in my face.
When I had a "Sleep Study done, they discovered that I have sleep apnea. I also have low oxygen levels. So now I sleep at night with oxygen running and it helps me to sleep better (maybe 3 hours), waking up jerking and then to the bathroom, back to bed and sleep another 3 hours. (better than nothing).
So maybe the answer for you may be the same. I sure hope so. It's 2:41 am and I'm up with jerking legs, praying for all of you who are up too. Maybe there will be an answer someday. God knows.