When I have stood on my feet for over 16 hours at work , the moment when I get home I try to sit down to just relax it becomes the worst feeling. I feel like I'm being electrocuted and it is painful and my legs and arms jersey and I lose control of them . This disease is so painful and unbearable that u can lose u r own insanity like I posted before I'm dying anyway and there's nothing I or these so called docs can do about it.

4 Replies

  • Honey I answered you on the other post, this sounds like some sort of nerve pain along with RLS. You should get referred to a pain clinic asap!!! Something else maybe going on. xxx Mitzi

  • Hi it's 3 am and I can't sleep. I feel for u when u have to work don't give up all of who suffer From pd can support each other in one way or another , I feel very alone yet have 6 grand children and 2 boys . Pain for me is also very bad when I take meds dr can't help also , life is tobe positive ,

  • Hi icelander, welcome to the forum, I am so sorry you are having such a terrinle time.I understand how you feel it is such a draining condition , Just when you want to relax the most the rls kicks in.I see that Elisse has explained all about augmentation in another post and I agree with her this is uour problem. Go and see your doctor you must get off this massive dose of dopamine it is makimg you worse.good luck let us know how you go on x

  • Sorry you are so low but I do know how you are feeling because it's just the same for me and hundreds more. Your doc can help I am on ropinorole 5mg and magnesium,and my legs. Are much better if I am late taking tabs it's help. So get to your docs and good luck. beady 3

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