Is this a normal RLS symptom? - Restless Legs Syn...

Restless Legs Syndrome

22,373 members16,487 posts

Is this a normal RLS symptom?

CraftyMomma profile image
23 Replies

Hi everyone,

I have just signed up to this forum as I came across it while looking into some ways to help improve my symptoms.

I was diagnosed with RLS at the beginning of the year but haven't had any severe symptoms until recently... over the last couple of months my legs and arms are extremely painful. They hurt all day, every day, my arms and legs tire so easily and my right leg is noticeably worse. While giving my limbs a stretch can ease it very slightly it doesn't last and I'm finding that mild exercise (like walking) which is supposed to help seems to cause the aching to be worse.

Is this typical of RLS?

Thanks in advance for any advice you can offer.

Written by
CraftyMomma profile image
CraftyMomma
To view profiles and participate in discussions please or .
23 Replies

To me that does not sound like RLS, but stick around for more experienced opinions.

Have a look at rls-uk.org/#/general-faqs-a...

You will find definitions of RLS there and possible treatments.

in reply to

special thanks for your help sowilo..did you get the bugs out of

your computer that was causing issues or was it on this end -

all of that trouble..and don't ever leave..We love having a great

guys opinion..You would be very sadly missed..we enjoy your humor,

good mannerisms and great ideas, contribution..=)

gypsy49 profile image
gypsy49

Hiya and welcome :)

As Yikes said more you talk about your symtoms the more you find out as you go along everyones different and react diffrently to meds im still on the search for the right combo like you i have it all over and can be painful at time i have RLS more or less 24/7 with hardly any rest ggrrr i have fibro with RLS which is more the pain side of it i think , I walk about all the time and as you have said only short term relief ,

here's a good site for reading on as well as the one Yikes has given you ninds.nih.gov/disorders/res... hopefully you'll find them both useful,

excuse any spelling errors lol

good luck hope you find what your looking for

in reply togypsy49

Thats the site i prefer, Gypsy, the other site has way to much stuff to wade through

gypsy49 profile image
gypsy49 in reply to

Me too specially for them thats just learning about RLS the other ones great for learning what meds good and what to keep away from just wish they had a search bar on it type what your looking for on it easier to find stuff ,

in reply togypsy49

gypsy49...thanks again for posting that address.

I haven't visited it in 2 months..If I can't get answers

on the other one, then I have that one again thanks

to you.

nightdancer profile image
nightdancer in reply togypsy49

That is an excellent site, too! ;)

nightdancer profile image
nightdancer

HI, you describe "aching". Do you also have the uncontrollable urge to move? It is not involuntary movements, but that feeling that if you do not move the affected limbs, they feel like they will explode with "electrical charges" as it is sometimes described. Pain can be part of RLS, for sure, but also could be something else. have you had a sleep study done, to measure any movements you may have in your sleep so that you are not reaching the right stages of sleep? And are you any meds lately that could be ramping up the RLS? many meds can cause or make RLS worse. rlshelp.org, go to the treatment page and see the list of "Drugs and Foods to Avoid". IT is the most concentrated information by an RLS expert in one place. ;) But the diagnostic criteria of RLS is on both the web sites listed here, and it has to include the URGE to move. If we are only talking about pain here, it could be something else, like Fibro. Also, about 33% of people with Fibro also have RLS, as was studied in a two very long 5 year studies. So , it is wise to rule other things out, as well. Good luck!

CraftyMomma profile image
CraftyMomma

Thank you all for your help, I will take a look at all those links. I'm happy with the restless legs diagnosis as I seem to tick most of the boxes I've come across! My doctor said I can expect it to get worse over time so wasn't sure if that is what's happening or if it was something new and unrelated

This pain seems different somehow to what I'm used to and doesn't ease off with movement.

I'm taking iron supplements as my doctor also said my low levels could affect rls and I also take vit D as I have had a severe deficiency of that.

Thanks again, I will check the links and get back to you if I have more questions.

Ok! Add Leonard123 to the list above. =) *

in reply to

Ok thank you Karen lol Andre

I am all sunshine and smiles..all the time. Someone

has to spread the love around the site. haha. =D.

Just think what they used to put in that stuff..no wonder

everyone was happy and bouncing around..I still

do not know what chocolate popcorn tastes like..the

two go together as well as coffee and chocolate for

me...ain't happenin' for me..haha. How about a great big

hershey kiss for everyone who reads this? =DD

nightdancer profile image
nightdancer in reply to

a hershey's kiss never hurt anyone. ;) Now I want some! LOL

in reply to

Try flip flops they we make you happy feet

in reply to

Kiss from me honey Big one

now why would you tell people to wait until certain ones come on help, arent we all here to help and be helped ?? realy !!

gypsy49 profile image
gypsy49 in reply to

that's what i thought other night ... there's always someone or other about to listen and help when possible as we all keep saying we all suffer differently no one person is the same and so no one person has the right or wrong answer ... sadly one day the experts might have the answers hmm... one can hope lol

the deal is we are ALL in this together, or arent we, it's a little dismissive of the other members realy to have said to wait for certain member's to come on, remember what happened to me not to long ago, i hung around waiting for advice, didnt get any, got an inquisition instead, plus when talking about years of experience with RLS dont we all have that ?. !!

in reply to

yes.

in reply to

Are you back yikes

Leonard, I think that I am unlucky. = D

in reply to

You are now you don't talk to me

nightdancer profile image
nightdancer

Yes, RLS is progressive and can present itself in different ways as it does progress for most of us. There is always the exception, but symptoms vary from person to person, so we have to remember that different people are helped by different things, a simple thing like a web site and how it is set up. It depends on how our brains learn what web sites are best for us, so the more the merrier. Knowledge is power! ;)

Not what you're looking for?

You may also like...

Rls in family/iron?

Hello im 28y old and i m trying 2 weeks every 2. days use iron bisglycinate 40mg + vit C before i...
laserr147 profile image

RLS Ruining my life

Hello, new to the site. I'm from a small town in USA. I have had RLS as long as I can remember....
cweith62 profile image

RLS has a secondary Symptom

Since my early teens ive always had what i described has fidgety feet and have never been able to...
brimsta_uk profile image

Is this RLS?

Good morning I'm wanting to ask a quick question about RLS. I have fibromyalgia, b12 deficiency and...
Wispymisty profile image

Is this RLS?

Hi everybody, my name is Margie and I would like some help please to confirm if I do in fact...

Moderation team

Kaarina profile image
KaarinaAdministrator
Geepjul profile image
GeepjulAdministrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.