Hi. Just found this site after what feels is the thousandth time looking up RLS. I keep looking to see if there has been any miraculous cure for it, but to no avail.
I've had RLS since approx my mid tens, I'm now 50. It's only been in recent years that I found it actually had a name, and that I wasn't the only one suffering this. And suffering really is what we do. Back then my Mum would give me half a tablet of ativan, not knowing the addicitive qualities that has. I didn't become addicted but it did work. Also she had arthritis in her knees which was helped by using 1% ephedrine solution blended into aquaous cream. So I used that until they stopped producing it. That worked too.
Because my RLS has become more severe now I am on duloxetine 120mg . I was originally put on this due to morbid depression and was doubled to the 120mg to cope with the RLS. It is not working. I also take between 300mg and 600mg of tramadol daily depending on the pain level of my arthritis and RLS. I rub 10% ibuprofen gel on my legs at night. This does help.
What I didn't realise until I came on here tonight is just how far reaching the restlessness goes. Such as in your arms, which is explaining why recently I've been having these symptons in mine.
Excuse the long post but I just wanted to put everything out there once and be done with it. I've never come across another person who has this so I am thankful to have found this site.