Progressive

[Effort]

A poll asking do you get progressively worse ?

cortjohnson.org/forums/thre...

[Dunnlyn]

Mixed feelings ticking boxes then so many experiences are the same not so isolated in a new world adjusted and adjust again without realising.

[ringading]

Without treating a cause deterioration seems almost inevitable and all the more surprising any recovery can be found.

[Ian123]

Progressive or relapsing remitting will be of more interest for researchers I think as coping with each day is easier with the belief tomorrow is a better day.

[Moonlightshadows]

Whatever the truth of recovery and progression my own preference is knowing the facts I found the disbelief from test results prolonged acceptance of health issues.

[Seascape]

Progressive but feel more up and down than the poll suggests.

[budgiefriend]

I agree with #Moonlightshadows . Without tests, we are left to wonder what is going on. I try to take some tests myself and write down the results. But I have difficulty interpreting them or fitting them together to make a picture.

I am not trained in any kind of science. I am trained in Fine Arts. Really out of my depth with all this.

I know what constitutes good research, I can get the gist of any article or research paper, but I will forget details and struggle with any complex or multi-stage line of thought.

My cognitive dysfunction is worsening in this regard. I can't do math problems beyond basic arithmetic in my head. When I am in pain, I can't even do that.

I do appreciate that we have scientists in the ME and Fibromyalgia communities who write blogs and report on the latest science. That interpretation of these studies and news helps so much. But even their blog articles are often too complicated to be of much use to me.

When will doctors be taught about these illnesses? When will they be required to do proper investigation online if there are areas they know nothing about and they need to know how to diagnose or refer or treat a patient?

I do not understand this at all. Is there anything we can do to make this possible?

[Mistymooring in reply to budgiefriend]

Predicted three separate groups of equal size (approximately) polling results ask researchers use science updating knowledge.