New to this !: Hi all I am awaiting... - Ramsays Disease

Ramsays Disease

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New to this !

cowre profile image
14 Replies

Hi all I am awaiting diagnosis for this my dr has referred me to someone but i was having a brain fog day who diganosed you she also says i have fibro along with pbc i have been off work since June and still do not feel refreshed i also can sleep all day and feel that i havent slept anyone have any advice. I am 55 yrs old and married thanks in advance x

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cowre profile image
cowre
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14 Replies
Theresa60 profile image
Theresa60

My own doctor diagnosed me a specialist not always needed. On the advice well listen to your own body and stop doing things when warning signals are heard.

cowre profile image
cowre in reply to Theresa60

Thank you Thersa xx

Arianne profile image
Arianne

Hi, welcome this has been a friendly site sharing advice for me.

Had a search for pbc because no idea what that is and can only speak from experience that stressing over getting fit again was not the choice been more patient instead of thinking I can't afford time off.

Effort profile image
Effort

I am not sure this will be of any comfort but sleeping and not refreshed is one thing that doctors look for making a diagnosis. Stay with us cowre a problem shared is a problem halved as granny always said.

Ian123 profile image
Ian123

Regardless of diagnosis treating the symptoms must be a priority so making a list prepares an effective relationship with the doctors.

cowre profile image
cowre

Thank you evreyone i will keep you updated xx

Onceagain profile image
Onceagain in reply to cowre

Listening out cowre

Emmaril profile image
Emmaril

I am still new and frightened of what is going to happen next.

Seascape profile image
Seascape in reply to Emmaril

Safety in numbers standing in the dark together Emmaril holding hands cannot change what happens next it can change how we cope though.

Effort profile image
Effort in reply to Seascape

I have a small light and will stand with you.

Jonesbones profile image
Jonesbones in reply to Effort

A double edge sword taking away a life I cherished on the other side I am mentally stronger and my friends are true friends through adversity.

Theresa60 profile image
Theresa60 in reply to Emmaril

Effects seem individual within a wide group of symptoms under the same umbrella disease name. How drugs work on some and not others shows a difficulty in knowing with any certainty just what is next for each individual person a fear and doubt that does not leave although in time coping becomes easier.

Emmaril profile image
Emmaril

Form a sentence words fail I must trust thank you all

arkangel49 profile image
arkangel49

Has anyone looked into ME/CFD.? Waking up feeling worse than you went to bed is one of the main symptoms, as is brain fog. When I go to the doctor, I always write down what I need to say. I depend upon my diary to write down everything that happens or is going to happen.

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